Uncovering the Challenges of Rare Diseases: Insights From a Retrospective Cross-Sectional Study in Albania (2005-2022)

Author:

Perolla Adela,Çalliku Elsuarta,Cili Alma,Caja Tatjana,Pulluqi Polikron,Ivanaj Arben

Publisher

Springer Science and Business Media LLC

Subject

Aerospace Engineering

Reference29 articles.

1. Public Law 107 - 280 - Rare Diseases Act of 2002. (2023). Accessed. January 11, 2024: https://www.govinfo.gov/app/details/PLAW-107publ280.

2. Regulation (EC) No 141/2000 of the European Parliament and of the Council of 16 December 1999 on orphan medicinal products. (2000). Accessed. November 13, 2023: https://eur-lex.europa.eu/LexUriServ/LexUriServ.do?uri=OJ:L:2000:018:0001:0005:en:PDF.

3. {BLR 1412} FDA - Orphan Drug - ABC - PMA. (1993). Accessed. November 13, 2023: https://www.liebertpub.com/doi/10.1089/blr.1993.12.13.

4. Access to orphan drugs: a comprehensive review of legislations, regulations and policies in 35 countries;Gammie T;PLoS One,2015

5. Estimating cumulative point prevalence of rare diseases: analysis of the Orphanet database;Nguengang Wakap S;Eur J Hum Genet,2020

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