How to Help Your Patients Enroll in the New-Onset Refractory Status Epilepticus (NORSE) and Febrile Infection-Related Epilepsy Syndrome (FIRES) Family Registry, and Other Rare Epilepsy Registries

Author:

Kazazian Karnig1ORCID,Kellogg Marissa2,Wong Nora3,Eschbach Krista4,Moeller Raquel Farias5,Gaspard Nicolas6,Hirsch Lawrence J.7,Hocker Sara8,Gofton Teneille1

Affiliation:

1. Schulich School of Medicine and Dentistry, Western University, London, Ontario, Canada

2. Oregon Health and Science University, Portland, OR, USA

3. NORSE Institute, Summit, NJ, USA

4. University of Colorado, Children’s Hospital Colorado, Aurora, CO, USA

5. Medical College of Wisconsin, Department of Neurology, Children’s Wisconsin, Milwaukee, WI, USA

6. Service de Neurologie, Université Libre de Bruxelles–Hôpital Erasme, Brussels, Belgium

7. Department of Neurology, Yale University, Comprehensive Epilepsy Center, New Haven, CT, USA

8. Division of Critical Care Neurology, Department of Neurology, Mayo Clinic, Rochester, MN, USA

Funder

the Robert N. Kohn Research Memorial Fund

Publisher

SAGE Publications

Subject

Clinical Neurology

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