The BETTER Traumatic Brain Injury Transitional Care Intervention: A Feasibility Study

Author:

Oyesanya Tolu O.1ORCID,Loflin Callan12,You HyunBin1,Myers John1,Kandel Melissa3,Johnson Karen3,Strauman Timothy4,Hawes Jodi2,Byom Lindsey5,Gonzalez-Guarda Rosa1,Van Houtven Courtney2,Agarwal Suresh2,Prvu Bettger Janet12

Affiliation:

1. Duke University School of Nursing, Durham, NC, USA

2. Duke University School of Medicine, Durham, NC, USA

3. Department of Physical and Occupational Therapy, Duke University Health System, Durham, NC, USA

4. Department of Psychology & Neuroscience, Duke University, Durham, NC, USA

5. Department of Allied Health Sciences, The University of North Carolina at Chapel Hill, Chapel Hill, NC, USA

Abstract

This study aimed to investigate the feasibility, acceptability, and clinical outcome measures of BETTER (Brain Injury Education, Training, and Therapy to Enhance Recovery), a culturally tailored traumatic brain injury (TBI) transitional care intervention, among diverse younger adult patients with TBI (age 18-64) and their caregivers. Trained clinical interventionists addressed patient/family needs; established goals; coordinated post-hospital care and resources; and provided patient/family training on self- and family-management coping skills. Fifteen dyads enrolled ( N = 31, 15 patients, 16 caregivers). All completed baseline data; 74.2% ( n = 23; 10 patients, 13 caregivers) completed 8-week data; 83.8% ( n = 26; 13 each) completed 16-week data. Approximately 38% ( n = 12, 3 patients, 9 caregivers) completed acceptability data, showing positive experiences (mea n = 9.25, range 0-10; SD = 2.01). Overall and mental quality of life (QOL) scores did not differ over time but physical QOL scores did improve over time (baseline: 30.3, 8 weeks: 46.5, 16 weeks: 61.6; p = 0.0056), which was considered to be a suitable outcome measure for a future trial. BETTER is a promising intervention with implications to improve TBI care standards. Research is needed to determine efficacy in a randomized trial.

Funder

National Institute on Aging

National Center for Medical Rehabilitation Research

National Institute on Minority Health and Health Disparities

Duke Roybal Center

Publisher

SAGE Publications

Subject

General Nursing

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