1. Tertiary Referral Center of Neuromuscular Diseases, Hospital de Apoio de Brasília, Brazil
2. Graduate Department of Health Science and Technology, University of Brasília, Brazil
3. Johns Hopkins University, School of Medicine, USA
4. Center of Innovation in Engineering and Industrial Technology, Polytechnic of Porto - School of Engineering (ISEP), Portugal
5. Palliative Care Program, Division of General Internal Medicine, Johns Hopkins Bayview Medical Center, Johns Hopkins University, School of Medicine, USA