How Can Policymakers be Encouraged to Support People With Spinal Cord Injury—Scoping Review

Author:

Arejan Roya Habibi12,Azadmanjir Zahra13,Ghodsi Zahra1,Dehghan Hamid Reza4,Sharif-Alhoseini Mahdi1,Tabary Mohammadreza5,Khaleghi-Nekou Melika1,Naghdi Khatereh1,Vaccaro Alexander R.6ORCID,Zafarghandi Mohammad Reza1,Rahimi-Movaghar Vafa178910ORCID

Affiliation:

1. Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran

2. Rehabilitation Office, State Welfare Organization of Iran, Tehran, Iran

3. Health Information Management Department, Tehran University of Medical Sciences, Tehran, Iran

4. Research Center for Health Technology Assessment and Medical Informatics, School of Public Health, Shahid Sadoughi University of Medical Sciences, Yazd, Iran

5. Experimental Medicine Research Center, Tehran University of Medical Sciences, Tehran, Iran

6. Department of Orthopedics and Neurosurgery, Rothman Institute, Thomas Jefferson University, Philadelphia, PA, USA

7. Brain and Spinal Cord Injury Research Center, Neuroscience Institute, Tehran University of Medical Sciences, Tehran, Iran

8. Department of Neurosurgery, Shariati Hospital, Tehran University of Medical Sciences, Tehran, Iran

9. Universal Scientific Education and Research Network (USERN), Tehran, Iran

10. Institute of Biochemistry and Biophysics, University of Tehran, Tehran, Iran

Abstract

Study Design: Scoping review. Objective: Regarding that inappropriate medical care approaches, absence of rehabilitation services, and existing barriers in physical, social, and policy environments lead to poor outcomes in individuals with spinal cord injury (SCI) and provision for appropriate interventions and care must be created by health policymakers, we conducted this scoping review to investigate how policymakers can be persuaded to set new plans for individuals with SCI. Methods: This review was performed according to Arksey and O’Malley’s framework. PubMed was searched in February2019 without language limitation. We looked for other potential gray literature sources and some professional websites. References sections of selected articles were also scanned for other relevant literature. Results: We included literature that met inclusion criteria to answer our research question. The literature was divided into 3 categories. The first category included economic impact of SCI. The second category included the role of research and developing research strategy. The third category included effective interaction and communication with policymakers. Conclusion: It is essential to consider multiple factors for influencing policymakers’ decisions. These factors include knowing how to communicate with policymakers and presenting constructive ideas, providing a source of valid, reliable, and consistent data, considering the role of patients’ advocacy groups and Non-Governmental Organizations (NGOs), and presentation of the importance of early intervention in reducing healthcare system costs. Ultimately, the goal is to have a comprehensive and flexible plan for influencing policymakers.

Publisher

SAGE Publications

Subject

Clinical Neurology,Orthopedics and Sports Medicine,Surgery

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