Hospital quality of life for children: development of a new measurement tool for hospitalised children

Abstract

Background: Hospitalisation affects children’s quality of life (QoL) regardless of illness, treatment and care. Aims: The objective of this study was to create an instrument for evaluating QoL of hospitalised children aged 7 to 18 years. Methods: Initially, 46 items for the preliminary Hospital Quality of Life for Children Scale (HQL-children) were developed through a combination of literature reviews and individual interviews. The study was conducted with 230 participants from a general paediatric ward of a hospital. Exploratory and confirmatory factor analyses were conducted to examine the construct, convergent and discriminant validities of the measure. Criterion validity was assessed by confirming split-half reliability, whereas reliability was established using Cronbach’s alpha coefficient. Results: The HQL-child scale consists of 17 items and the total variance is 51.14%. The scale is categorised into five sub-dimensions: illness, fear, activity, hospital and perception. The scale demonstrated construct, convergent and divergent validity, discriminant and split-half reliability, with Cronbach’s alpha coefficient 0.75. Conclusions: The scale is a promising instrument to determine children’s perception by capturing their experiences on hospitalisation. Assessing the QoL in hospitalised children is crucial for enhancing patient satisfaction and facilitating the development of health policies based on patient self-reporting in Turkey.