QUALITY OF LIFE OF CHILDREN WITH HEREDITARY DISORDERS OF CONNECTIVE TISSUE DEVELOPMENT AND THEIR PARENTS IN THE PROCESS OF DYNAMIC CONTROL IN A POLYCLINIC

Abstract

In this work, the authors assessed the quality of life of patients with hereditary disorders of connective tissue development and their parents in the process of dynamic control in a polyclinic. In the period from 2014 to 2023, patients were under dispensary observation. The main group of patients (n=30) and the comparison group (n=30) are presented. At the beginning of treatment, the average age was X sr. ± 4.7±0.5 years. For patients of the two groups, therapeutic measures were proposed, which included back massage No. 10 1 time in 4 months, electrical stimulation of the back muscles No. 10 1 time in 6 months, and a physical therapy complex. Additionally, for the main group of patients, classes were prescribed at the school "Posture Correction", swimming, corseting, additional physiotherapy complexes (electrical stimulation of the back 3 courses of 10 sessions per year), back massage for 10 sessions every month, diet and vitamin therapy for 3 years. In dynamics, in the main group, the number of complications from the osteoarticular system was minimized. The quality of life in patients of the main group and their parents significantly improved according to the parameters of the PedsQL questionnaire. It was statistically significantly proved that during the period of dispensary observation, the patients of the main group and their parents improved physical parameters in 65.0% of cases (in the comparison group in 20.3% of cases), p = 0.016; emotional parameters in 59.8% of cases (in the comparison group in 21.0% of cases), p = 0.014.At the same time, a satisfactory muscular corset was visualized, which was confirmed by additional examination methods (electroneuromyographic, stabilometric), complications from the osteoarticular system were reduced. In patients in the comparison group and their parents, the quality of life did not change statistically significantly. Patients noted hypotension of the back muscles in 53% of cases, pain on palpation along the spine in the thoracic region in 37.3% of cases (p<0.001).