The ERA Registry Annual Report 2019: summary and age comparisons

Author:

Boenink Rianne1,Astley Megan E1,Huijben Jilske A1,Stel Vianda S1,Kerschbaum Julia2,Ots-Rosenberg Mai3,Åsberg Anders A45,Lopot Frantisek6,Golan Eliezer7,Castro de la Nuez Pablo8,Rodríguez Camblor Marta9,Trujillo-Alemán Sara10,Ruiz San Millan Juan Carlos11,Ucio Mingo Pablo12,Díaz Juan Manuel13,Bouzas-Caamaño M Encarnación14,Artamendi Marta15,Aparicio Madre Manuel I16,Santiuste de Pablos Carmen1718,Slon Roblero María Fernanda19,Zurriaga Oscar182021,Stendahl Maria E22,Bell Samira2324,Idrizi Alma25,Ioannou Kyriakos2627,Debska-Slizien Alicja28,Galvão Ana A29,De Meester Johan M30,Resić Halima31,Hommel Kristine32,Radunovic Danilo33,Pálsson Runolfur3435,Lassalle Mathilde36,Finne Patrik3738,De los Ángeles-Garcia Bazaga María39,Gjorgjievski Nikola4041,Seyahi Nurhan42ORCID,Bonthuis Marjolein143,Ortiz Alberto4445ORCID,Jager Kitty J1,Kramer Anneke1ORCID

Affiliation:

1. ERA Registry, Department of Medical Informatics, Amsterdam UMC, University of Amsterdam, Amsterdam Public Health research institute, Amsterdam, The Netherlands

2. Austrian Dialysis and Transplant Registry, Department of Internal Medicine IV—Nephrology and Hypertension, Medical University Innsbruck, Innsbruck, Austria

3. Department of Internal Medicine of Tartu University and Tartu University Hospital, Tartu, Estonia

4. The Norwegian Renal Registry, Oslo University Hospital—Rikshospitalet, Oslo, Norway

5. Department of Transplantation Medicine, Oslo University Hospital—Rikshospitalet, Oslo, Norway

6. Department of Medicine, General University Hospital, Prague—Strahov, Czech Republic

7. Israel Renal Registry, Ramat Gan, Israel

8. SICATA: Information System of the Autonomous Coordination of Transplants of Andalusia, Seville, Andalucia, Spain

9. RERCA, Public Health Directorate, Asturias, Spain

10. Health Quality Assessment and Information System Service, Dirección General de Programas Asistenciales, Servicio Canario de la Salud, Canary Islands, Spain

11. Department of Nephrology, Valdecilla Hospital, IDIVAL, University of Cantabria, Santander, Cantabria, Spain

12. Coordinación Autonómica de Trasplantes de Castilla y León, Dirección General de Planificación y Asistencia Sanitaria, Valladolid, Castilla y León, Spain

13. Servei Nefrologia, Fundació Puigvert, Barcelona, Catalonia, Spain

14. Regional Transplant Coordination of Galicia, Galician Health Service, Santiago de Compostela, Galicia, Spain

15. Nephrology Department, Hospital San Pedro, Logroño, La Rioja, Spain

16. Oficina Regional de Coordinación de Trasplantes, Madrid Region, Spain

17. Murcia Renal Registry, Department of Epidemiology, Murcia Regional Health Council, IMIB-Arrixaca, Murcia, Spain

18. CIBERESP (Spanish Consortium for Biomedical Research in Epidemiology and Public Health), Madrid, Spain

19. Complejo Hospitalario de Navarra, Pamplona, Navarra, Spain

20. Valencian Region Renal Registry, Valencia Regional Health Authority, Generalitat Valenciana, Spain

21. Universitat de Valencia, Valencia, Spain

22. Swedish Renal Registry, Department of Internal Medicine, Jonkoping Regional Hospital, Jonkoping, Sweden

23. Division of Population Health and Genomics, School of Medicine, University of Dundee, Dundee, UK

24. The Scottish Renal Registry, Scottish Health Audits, Public Health Scotland, Meridian Court, Glasgow, UK

25. Service of Nephrology, UHC Mother Teresa, Tirana, Albania

26. Cyprus Renal Registry, Nicosia, Cyprus

27. Nephrology Department, American Medical Center, Nicosia, Cyprus

28. Department of Nephrology, Transplantology and Internal Medicine, Gdansk Medical University, Gdansk, Poland

29. Portuguese Society of Nephrology, Coimbra, Portugal

30. Department of Nephrology, Dialysis and Hypertension, Dutch-speaking Belgian Renal Registry (NBVN), Sint-Niklaas, Belgium

31. Society of Nephrology and Dialysis of Bosnia and Herzegovina, Sarajevo, Bosnia and Herzegovina

32. Department of Medicine, Holbaek Hospital, Holbaek, Denmark

33. Clinical Center of Montenegro, Clinic for Nephrology, Podgorica, Montenegro

34. Division of Nephrology, Landspitali–The National University Hospital of Iceland, Reykjavik, Iceland

35. Faculty of Medicine, School of Health Sciences, University of Iceland, Reykjavik, Iceland

36. REIN Registry, Agence de la Biomédecine, Saint-Denis La Plaine, France

37. Department of Nephrology, University of Helsinki and Helsinki University Hospital, Helsinki, Finland

38. Finnish Registry for Kidney Diseases, Helsinki, Finland

39. Dirección General de Salud Pública, Servicio Extremeño de Salud, Consejería de Sanidad y Políticas Sociales, Junta de Extremadura, Spain

40. University Hospital of Nephrology, Skopje, North Macedonia

41. Faculty of Medicine, University SS “Cyril and Methodius”, Skopje, North Macedonia

42. Department of Nephrology, Cerrahpaşa Medical Faculty, Istanbul University-Cerrahpaşa, Istanbul, Turkey

43. ESPN/ERA Registry, Department of Medical Informatics, Amsterdam UMC, University of Amsterdam, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands

44. Department of Nephrology and Hypertension, IIS-Fundacion Jimenez Diaz UAM, Madrid, Spain

45. Department of Medicine, Universidad Autonoma de Madrid, Madrid, Spain

Abstract

ABSTRACT Background Data on renal replacement therapy (RRT) for end-stage renal disease were collected by the European Renal Association (ERA) Registry via national and regional renal registries in Europe and countries bordering the Mediterranean Sea. This article provides a summary of the 2019 ERA Registry Annual Report, including data from 34 countries and additional age comparisons. Methods Individual patient data for 2019 were provided by 35 registries and aggregated data by 17 registries. Using these data, the incidence and prevalence of RRT, the kidney transplantation activity and the survival probabilities were calculated. Results In 2019, a general population of 680.8 million people was covered by the ERA Registry. Overall, the incidence of RRT was 132 per million population (p.m.p.). Of these patients, 62% were men, 54% were ≥65 years of age and 21% had diabetes mellitus as primary renal disease (PRD), and 84% had haemodialysis (HD), 11% had peritoneal dialysis (PD) and 5% had pre-emptive kidney transplantation as an initial treatment modality. The overall prevalence of RRT on 31 December 2019 was 893 p.m.p., with 58% of patients on HD, 5% on PD and 37% living with a kidney transplant. The overall kidney transplant rate was 35 p.m.p. and 29% of the kidney grafts were from a living donor. The unadjusted 5-year survival probability was 42.3% for patients commencing dialysis, 86.6% for recipients of deceased donor grafts and 94.4% for recipients of living donor grafts in the period 2010–14. When comparing age categories, there were substantial differences in the distribution of PRD, treatment modality and kidney donor type, and in the survival probabilities.

Funder

ERA

Publisher

Oxford University Press (OUP)

Subject

Transplantation,Nephrology

Reference2 articles.

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