Functional disability and its predictors in systemic sclerosis: a study from the DeSScipher project within the EUSTAR group

Author:

Jaeger Veronika K1,Distler Oliver2,Maurer Britta2,Czirják Laszlo3,Lóránd Veronika3,Valentini Gabriele4,Vettori Serena4,Del Galdo Francesco5,Abignano Giuseppina5,Denton Christopher6,Nihtyanova Svetlana6,Allanore Yannick7,Avouac Jerome7,Riemekasten Gabriele8,Siegert Elise9,Huscher Dörte10,Matucci-Cerinic Marco11,Guiducci Serena11,Frerix Marc12,Tarner Ingo H12,Garay Toth Beata13,Fankhauser Beat14,Umbricht Jörg14,Zakharova Anastasia15,Mihai Carina16,Cozzi Franco17,Yavuz Sule18,Hunzelmann Nicolas19,Rednic Simona20,Vacca Alessandra21,Schmeiser Tim22,Riccieri Valeria23,García de la Peña Lefebvre Paloma24,Gabrielli Armando25,Krummel-Lorenz Brigitte26,Martinovic Duska27,Ancuta Codrina28,Smith Vanessa29,Müller-Ladner Ulf12,Walker Ulrich A1

Affiliation:

1. Department of Rheumatology, University Hospital Basel, Basel

2. Department of Rheumatology, University Hospital Zurich, Zurich, Switzerland

3. Department of Rheumatology and Immunology, Medical Center, University of Pécs, Pécs, Hungary

4. Department of Rheumatology, Second University of Naples, Naples, Italy

5. NIHR Leeds Musculoskeletal Biomedical Research Unit, Leeds Teaching Hospitals NHS Trust and Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds

6. Department of Rheumatology, University College London, Royal Free Hospital, London, UK

7. Department of Rheumatology, University of Paris Descartes, Paris, France

8. Department of Rheumatology, University Clinic Schleswig-Holstein, Lübeck

9. Department of Rheumatology and Clinical Immunology, University Hospital Charité

10. German Rheumatism Research Centre, Berlin, Germany

11. Department of Rheumatology, University of Florence, Florence, Italy

12. Department of Rheumatology and Clinical Immunology, Justus-Liebig University Giessen, Kerckhoff Clinic Bad Nauheim, Bad Nauheim, Germany

13. Federation of European Scleroderma Associations Aisbl, Budapest, Hungary

14. new-win SW Solutions AG, Suhr, Switzerland

15. VA Nasonova Institute of Rheumatology, Moscow, Russian Federation

16. Department of Internal Medicine and Rheumatology, Dr Ion Cantacuzino Clinical Hospital, Carol Davila University of Medicine and Pharmacy, Bucharest, Romania

17. Rheumatology Unit, Department of Medicine, University of Padova, Padova, Italy

18. Department of Rheumatology, University of Marmara, Altunizade-Istanbul, Turkey

19. Department of Dermatology, University of Cologne, Cologne, Germany

20. Clinica Reumatologie, University of Medicine & Pharmacy, Cluj-Napoca, Romania

21. II Chair of Rheumatology, University of Cagliari-Policlinico Universitario, Monserrato, Italy

22. Department of Rheumatology and Immunology, Krankenhaus St Josef, Wuppertal, Germany

23. Divisione di Reumatologia, Università di Roma La Sapienza, Roma, Italy

24. Servicio de Reumatología, Hospital Universitario Madrid Norte Sanchinarro, Madrid, Spain

25. Istituto di Clinica Medica Generale, Ematologia ed Immunologia Clinica, Università Politecnica delle Marche, Ancona, Italy

26. Endokrinologikum Frankfurt, Frankfurt, Germany

27. Division of Rheumatology, University Hospital of Split, Split, Croatia

28. Rheumatology 2 Department, Clinical Rehabilitation Hospital, University of Medicine and Pharmacy ‘Grigore T. Popa’, Iasi, Romania

29. Faculty of Internal Medicine, Ghent University, Ghent, Belgium

Publisher

Oxford University Press (OUP)

Subject

Pharmacology (medical),Rheumatology

Reference39 articles.

1. Health-related quality of life in systemic sclerosis: a systematic review;Hudson;Arthritis Rheum,2009

2. Quality of life and functional status in systemic sclerosis compared to other rheumatic diseases;Johnson;J Rheumatol,2006

3. Impact of digital ulcers on disability and health-related quality of life in systemic sclerosis;Mouthon;Ann Rheum Dis,2010

4. The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context;Kwakkenbos;BMJ Open,2013

5. Disease and symptom burden in systemic sclerosis: a patient perspective;Suarez-Almazor;J Rheumatol,2007

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