Transition from paediatric to adult epilepsy care: Patients’ experiences of learning how to manage with epilepsy

Abstract

Objective: the purpose of this study was to explore patient’s experiences of learning how to manage with epilepsy during the transition process. Materials and Methods: a qualitative methodology, constructivist grounded theory, Charmaz version guided this study. Data collected in semi-structured interviews with 10 adults. Results showed that independent individual patient-physician communication starts in the adult epilepsy care. Family members are taking care of child and protection of risk, but transition to adult care is uncertain. Patient - physician communication differences between paediatric and adult epilepsy demands assistants during the transition. Conclusions: patients feel uncomfortable due to a lack of knowledge about process of transition in adult epilepsy care. Family members feel fear and responsibility for their child and restrict self-independence of their child. Knowledge about epilepsy, reconciliation depends on patient and physician connection.