Patient perspectives on using eHealth technologies for self-management of Inflammatory Bowel Disease: a mixed-method study (Preprint)

Abstract

Inflammatory Bowel Disease (IBD) poses significant challenges for patients, requiring continuous monitoring and self-management to improve their quality of life.

This study aims to investigate the viewpoints of individuals living with IBD regarding the use of Information and Communication Technology (ICT) for self-management of their condition, with a particular focus on the concept of a 'smart' toilet as an example of ICT for self-management.

We conducted an analysis of questionnaire responses obtained from 724 participants. They were encouraged to share their use cases and identify any perceived barriers associated with ICT adoption for managing their condition. To assess their responses, we used descriptive quantitative analysis, summative content analysis, and thematic qualitative analysis. We combined these results in an epistemic network analysis to look for meaningful patterns in the responses.

Among the participants in the study, more than half of the participants were already using various forms of ICT for IBD self-management. The primary factor influencing their current use was their affinity with technology interaction. Distinct differences emerged between individuals currently using ICT and those who do not, particularly regarding their perceived use cases and concerns.

This study provides valuable insights into the perspectives of individuals with IBD regarding the use of ICT for self-management. To facilitate wider adoption, addressing privacy concerns, ensuring data security, and establishing reliable ICT integration will be critical.