Experiences of Family Caregivers of People with Dementia during the COVID-19 Pandemic: A Qualitative Study

Author:

AKYOL Merve Aliye1ORCID,KÜÇÜKGÜÇLÜ Özlem1ORCID,AKPINAR SÖYLEMEZ Burcu1ORCID,GÖNEN ŞENTÜRK Seher2ORCID,GÜL Baran1ORCID

Affiliation:

1. DOKUZ EYLUL UNIVERSITY, FACULTY OF NURSING

2. ÇANKIRI KARATEKİN ÜNİVERSİTESİ, SAĞLIK BİLİMLERİ FAKÜLTESİ

Abstract

Background: Given the rapid spread of the COVID-19 virus and an uncertain length of restrictions worldwide, it is extremely important to determine the experiences and needs of the caregivers of people with dementia (PwD). Objectives: This study aimed to understand the experiences of family caregivers of PwD during the COVID-19 pandemic. Methods: This study was a descriptive qualitative study using in-depth interviews. The study sample consisted of 29 caregivers of PwD from January to February 2021 in western of Turkey. The content analysis technique was used to analyze the data. Results: A range of themes were derived from the data. The experiences of caregivers of PwD were grouped into two main salient themes: difficulties and funding solutions. The experiences of caregivers during the pandemic process varied. Also, most caregivers had multiple and serious problems. Conclusion: This study highlights the challenges and needs for family caregivers of PwD during the COVID-19 pandemic. It is important to better tackle the rapid challenges of families living with dementia by using feasible and effective care strategies.

Publisher

E-Journal of Dokuz Eylul University Nursing Faculty

Reference41 articles.

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2. Alzheimer’s Disease International. (2019). World Alzheimer Report 2019 Attitudes to dementia. https://www.alzint.org/u/WorldAlzheimerReport2019.pdf

3. Alzheimer Europe. (2020). Alzheimer Europe recommendations on promoting the wellbeing of people with dementia and carers during the COVID-19 pandemic. Luxemburg: Alzheimer Europe. https://www.alzheimer-europe.org/Policy/Our-opinion-on/Wellbeing-of-people-with-dementia-during-COVID-19-pandemic.

4. Boddy, C. R. (2016). Sample size for qualitative research. Qualitative Market Research, 19(4), 426-432.

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