Abstract
Aim: analyze the effectiveness of an online delivered psychological intervention program for oncological palliative caregivers in order to reduce the distress and caregiver burden. Methods: The program was developed for primary caregivers of advanced cancer patients, with a life expectancy of less than 6 months. The intervention consisted of 4 weekly sessions. The assessment instruments were the Caregiver Emotional Distress Detection Scale and the Zarit’s Reduced Scale and were applied at the beginning and end of the program. In addition, the main worries of the caregivers were categorized by the Caregiver Emotional Distress Detection Scale. Descriptive statistics and Student’s t were used. Results: 38 caregivers enrolled in intervention, 81.6% of whom were women. Regarding the degree of kinship, 44.7% were descendants of the patient. The distress was significantly reduced after the intervention. Uncertainty remained the main worry at both moments of measurement. Before the program, the second most frequent worry was the suffering of the patient, while after the intervention it was worries about the suffering of other family members. Conclusions: Carrying out this online group psychological intervention program proved to be effective in reducing emotional distress in the main caregivers of cancer patients at the end of life. Uncertainty was a constant concern throughout the program in the relatives.
Publisher
Universidad Complutense de Madrid (UCM)
Reference29 articles.
1. Hales S. and Rodin G. Managing Cancer and Living Meaningfully (CALM) Therapy. En: Breitbart W, Butow P, Jacobsen P, Lam W, Lazenby M, Loscalzo M., editors. Psycho-Oncology. Oxford University Press; 2021. p.502-508.
2. Budhwani S, Moineddin R, Wodchis WP, Zimmermann C, Howell D. Do longitudinally collected symptom scores predict time to death in advanced breast cancer: A joint modeling analysis. J Pain Symptom Manage 2020;59:1009-18. https://doi-org.bucm.idm.oclc.org/10.1016/j.jpainsymman.2019.12.006
3. Observatorio del Cáncer de la AECC. Resumen ejecutivo: Problemas actuales, elementos de mejora y desafíos futuros de los cuidados paliativos en la población oncológica. Asociación Española Contra el Cáncer. 2022- [Acceso 10 de enero de 2024]. Disponible en: https://observatorio.contraelcancer.es/informes/los-cuidados-paliativos-en-poblaciononcologica-problemas-actuales-elementos-de-mejora-y
4. Mollica MA, Smith AW, Tonorezos E, Castro K, Filipski KK, Guida J, Perna F, et al. Survivorship for individuals living with advanced and metastatic cancers: national cancer institute meeting report. J Natl Cancer Inst 2022;114: 489-95 https://doi.org/10.1093/jnci/djab223
5. Ochoa C. Intervenciones grupales en cáncer avanzado. En: Gil Moncayo FL, Maté Méndez J. Modelos de intervención psicológica específicos al final de la vida. Obra Social “La Caixa”. 2015. p.167-173.