First Sociodemographic, Pretreatment and Clinical Data from a German Web-Based Registry for Child and Adolescent Anorexia Nervosa

Author:

Bühren Katharina1,Herpertz-Dahlmann Beate1,Dempfle Astrid2,Becker Katja3,Egberts Karin M.4,Ehrlich Stefan5,Fleischhaker Christian6,von Gontard Alexander7,Hahn Freia8,Jaite Charlotte9,Kaess Michael1011,Legenbauer Tanja12,Renner Tobias J.13,Schrötter Ellen14,Schulze Ulrike15,Sinzig Judith16,Antony Gisela17,Hebebrand Johannes18,Föcker Manuel18

Affiliation:

1. Department of Child and Adolescent Psychiatry, Psychosomatics and Psychotherapy, University Hospital, RWTH Aachen, Germany

2. Institute of Medical Informatics and Statistics, Kiel University, Germany

3. Department of Child and Adolescent Psychiatry, Psychosomatics and Psychotherapy, Philipps University Marburg and University Hospital Marburg, Germany

4. Department of Child and Adolescent Psychiatry, Psychosomatics and Psychotherapy, University Hospital Würzburg, Germany

5. Department of Child and Adolescent Psychiatry & Division of Psychological & Social Medicine and Developmental Neurosciences, Faculty of Medicine, Technical University Dresden, Germany

6. Department of Child and Adolescent Psychiatry and Psychotherapy, University Medical Center Freiburg, Germany

7. Department of Child and Adolescent Psychiatry, Saarland University Hospital, Homburg, Germany

8. Department of Child an Adolescent Psychiatry, Psychosomatics and Psychotherapy, LVR – Hospital Viersen, Germany

9. Charité – Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, and Berlin Institute of Health, Department of Child and Adolescent Psychiatry, Psychosomatic Medicine and Psychotherapy, Berlin, Germany

10. Clinic of Child and Adolescent Psychiatry, Center for Psychosocial Medicine, University Hospital Heidelberg, Germany

11. University Hospital of Child and Adolescent Psychiatry and Psychotherapy, University of Bern, Switzerland

12. LWL University Hospital Hamm for Child and Adolescent Psychiatry, Ruhr University Bochum, Germany

13. Department of Child and Adolescent Psychiatry, Psychosomatics and Psychotherapy, University Hospital Tübingen, Germany

14. Department of Child and Adolescent Psychiatry, Faculty of Medicine, Technical University Dresden, Germany

15. Department of Child and Adolescent Psychiatry/Psychotherapy, University Hospital, University of Ulm, Germany

16. Department of Child and Adolescent Psychiatry, Psychosomatics and Psychotherapy, LVR-Klinik Bonn, Germany

17. Central Information Office KKNMS, Philipps University Marburg, Germany

18. Department of Child and Adolescent Psychiatry, Psychotherapy, and Psychosomatics, University Hospital Essen, University of Duisburg-Essen, Germany

Abstract

Abstract. Objective: The first web-based registry for childhood and adolescent anorexia nervosa (AN) in Germany was established to systematically collect demographic and clinical data. These data as well as information on how young individuals with AN can find access to healthcare services are presented. Method: Patients´ data from child and adolescent psychiatry departments of 12 university hospitals and two major nonuniversity hospitals in Germany were collected between January 2015 and December 2016. All patients met the ICD-10 diagnostic criteria for (atypical) AN. Sociodemographic data, type and amount of healthcare utilization before admission, and clinical data at admission and discharge were compiled. Results: 258 patients with a mean age of 14.7 years and a mean BMI at admission of 15.3 kg/m2 were included. The parents and patients had a higher educational level than the general German population. More than 80 % of the patients reported having utilized healthcare before hospitalization. The mean duration of outpatient treatment before hospitalization was 7 months. Conclusions: There seem to be major barriers to specialist treatment for young patients with AN in Germany, which should be analyzed in future studies.

Publisher

Hogrefe Publishing Group

Subject

Psychiatry and Mental health,Clinical Psychology,General Medicine,Pediatrics, Perinatology, and Child Health

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