Patient involvement in medical research: what patients and physicians learn from each other-Reference-Cited by-同舟云学术

Patient involvement in medical research: what patients and physicians learn from each other

Published:2019-01-24 Issue:1 Volume:14 Page:
ISSN:1750-1172
Container-title:Orphanet Journal of Rare Diseases
language:en
Short-container-title:Orphanet J Rare Dis

Author:

,Young Kalen,Kaminstein Dana,Olivos Ana,Burroughs Cristina,Castillo-Lee Celeste,Kullman Joyce,McAlear Carol,Shaw Dianne G.,Sreih Antoine,Casey George,Merkel Peter A.

Funder

Patient-Centered Outcomes Research Institute

Publisher

Springer Science and Business Media LLC

Link

http://link.springer.com/content/pdf/10.1186/s13023-018-0969-1.pdf

Reference16 articles.

1. Shippee ND, Domecq Garces JP, Lopez GJP, et al. Patient and service user engagement in research: a systematic review and synthesized framework. Health Expect. 2013;18:1151–66.

2. White MA, Werhoef MJ. Toward a patient-centered approach: incorporating principles of participatory action research into clinical studies. Integr Cancer Sci Ther. 2005;4(1):21–4.

3. Baum F, MacDougall C, Smith D. Participatory action research. J Epidemiol Community Health. 2006;60:854–7.

4. Forsythe LP, Szydlowski V, Murad MH, et al. A systematic review of approaches for engaging patients for research on rare diseases. J Gen Intern Med. 2014;29(Suppl 3):S788–800.

5. Hoffman A, Montgomery R, Aubry W, Tunis SR. How best to engage patients, doctors, and other stakeholders in designing comparative effectiveness studies. Health Aff. 2010;29(10):1834–41.

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