Innovations in research and clinical care using patient‐generated health data

Author:

Jim Heather S. L.1ORCID,Hoogland Aasha I.1,Brownstein Naomi C.2ORCID,Barata Anna1,Dicker Adam P.3,Knoop Hans4,Gonzalez Brian D.1ORCID,Perkins Randa5,Rollison Dana6,Gilbert Scott M.7,Nanda Ronica89,Berglund Anders2ORCID,Mitchell Ross2,Johnstone Peter A. S.8

Affiliation:

1. Department of Health Outcomes and Behavior Moffitt Cancer Center Tampa Florida

2. Department of Biostatistics and Bioinformatics Moffitt Cancer Center Tampa Florida

3. Department of Radiation Oncology Sidney Kimmel Medical College, Thomas Jefferson University Philadelphia Pennsylvania

4. Department of Medical Psychology, Amsterdam University Medical Centers, University of Amsterdam, Amsterdam Public Health Research Institute Amsterdam the Netherlands

5. Department of Clinical Informatics and Clinical Systems Moffitt Cancer Center Tampa Florida

6. Department of Cancer Epidemiology Moffitt Cancer Center Tampa Florida

7. Department of Genitourinary Oncology Moffitt Cancer Center Tampa Florida

8. Department of Radiation Oncology Moffitt Cancer Center Tampa Florida

9. BayCare Health Systems Inc, Morton Plant Hospital Clearwater Florida

Funder

National Cancer Institute

Publisher

Wiley

Subject

Oncology,Hematology

Reference242 articles.

1. HealthIT Office of the National Coordinator for Health Information Technology (ONC) US Department of Health Human Services.What are patient‐generated health data?Accessed October 15 2019.healthit.gov/topic/otherhot-topics/what-are-patient-generated-health-data

2. ShapiroM JohnstonD WaldJ MonD.Patient‐generated health data. White paper. RTI International. Prepared for Office of Policy and Planning Office of the National Coordinator for Health Information Technology; 2012. Accessed October 15 2019.rti.org/publication/patient-generated-health-data-white-paper

3. Focusing on Core Patient-Reported Outcomes in Cancer Clinical Trials: Symptomatic Adverse Events, Physical Function, and Disease-Related Symptoms

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