Implementing Palliative Care Teams Specialized in Dementia in Two Countries: Experiences of Failure and Success

Author:

van der Steen Jenny T.12ORCID,van Leussen Carolien A.3,Ballentine Joanne4,Gribben Loretta5,Reid Joanne6,Hasson Felicity7,Brazil Kevin6,The B. Anne-Mei3,McLaughlin Dorry8

Affiliation:

1. Department of Public Health and Primary Care, Leiden University Medical Center, Leiden, The Netherlands

2. Department of Primary and Community Care, Radboud university medical center, Nijmegen, The Netherlands

3. Tao of Care, Amsterdam, The Netherlands

4. Project Lead of Hospice Enabled Dementia Partnership, Northern Ireland Hospice, Belfast, Northern Ireland

5. Policy and Practice Royal College of Nursing NI, Belfast, Northern Ireland

6. School of Nursing and Midwifery, Queen’s University Belfast, Belfast, Northern Ireland

7. Institute of Nursing and Health Research, School of Nursing, Ulster University, Newtownabbey, Northern Ireland

8. Formerly Lecturer in Palliative Care and Chronic Illness, School of Nursing and Midwifery & Centre for Evidence and Social Innovation, Queen’s University, Belfast, Northern Ireland

Abstract

Much is known about palliative care needs of persons with dementia and their family. Less is known about how to successfully implement models that address those needs. We present specialist models in the Netherlands (2017-2018) and Northern Ireland (2016-2017) contrasting its evaluations. From implementation failure in the Netherlands compared with successful implementation in Northern Ireland, we learn that recognizing roles and competencies among all involved is essential in developing effective partnership relationships. All of this is facilitated by referral before the end of life and offering various training programs and in-patient and out-patient services and therapies to show benefits early.

Publisher

IOS Press

Subject

Psychiatry and Mental health,Geriatrics and Gerontology,Clinical Psychology,General Medicine,General Neuroscience

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