Addressing social determinants of health through customization: Quality improvement, telemedicine, and care coordination to serve immigrant families

Author:

Castillo Heidi12,Locastro Mary M.3,Fremion Ellen4,Malhotra Anjali3,Morales Rosanna5,Timmons Kelly5,Jarosz Susan6,Dosa Nienke P.3,Castillo Jonathan12

Affiliation:

1. Developmental Medicine, Department of Pediatrics, Children’s Nebraska Hospital, Omaha, NE, USA

2. Developmental Pediatrics, Department of Pediatrics, Baylor College of Medicine, Houston, TX, USA

3. Spina Bifida Center of Central New York, Department of Pediatrics, SUNY Upstate Medical University, Syracuse, NY, USA

4. Transition Medicine, Department of Internal Medicine, Baylor College of Medicine, Houston, TX, USA

5. Texas Children’s Hospital, Houston, TX, USA

6. Division of Pediatric Urology, Department of Surgery, Texas Children’s Hospital and Scott Department of Urology, Baylor College of Medicine, Houston, TX, USA

Abstract

PURPOSE: The purpose of this project was to establish a pathway for electronic medical record (EMR) customization, utilizing quality improvement methodology, to both identify and address adverse social determinants of health (SDOH) among a diverse spina bifida (SB) population. METHODS: Starting in September 2020, the four fundamental steps were to (1) facilitate an advisory committee to safeguard the standard clinical protocols, (2) characterize barriers to implementation, (3) evaluate workflow to sustain data entry capture, and (4) manage the technology platform for seamless integration. The SB clinic was the first clinic within the enterprise to rollout the use of an adverse SDOH mitigation activity. A Spanish-speaking interpreter was scheduled for all clinics, as many families were limited in English proficiency. RESULTS: The customization of the EMR to support an efficient workflow to address SDOH was feasible in a large and diverse urban medical center. Of the 758 patients served in the clinic, a myelomeningocele diagnosis was present in 86% of individuals. While 52% of participants were female, ethnically 52% of individuals served were Latino. Many of these individuals disclosed being recent immigrants to the United States. Often immigration and asylum related issues were at the forefront of the SDOH issues addressed. CONCLUSION: Given the occurrence of adverse SDOH among individuals with SB, many of whom are new Latin-American immigrants, meaningful clinical efforts are needed to both identify and address the causes of the observed disparities. EMR customization is feasible and can identify and, through social prescriptions, address SDOH to support the provision of safe, high quality, and equitable care for vulnerable and medically complex populations at home and potentially abroad.

Publisher

IOS Press

Subject

Rehabilitation,Physical Therapy, Sports Therapy and Rehabilitation,Pediatrics, Perinatology and Child Health

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