Desire and will of institutionalized older adults regarding end-of-life terminality

Abstract

Abstract Objective The present study aimed to explore the desires and wishes of older adults residing in Long-Term Care Facilities (LTCFs) regarding end-of-life terminality. Method This was a descriptive and exploratory qualitative research, involving 18 older adults from two LTCFs in a city in the central region of the state of Rio Grande do Sul (RS), Brazil. Data collection took place from March to May 2022 through semi-structured interviews and using the "cards on the table" technique. The data were subjected to discursive textual analysis. Results Five categories emerged: Family welcoming and acceptance: death in LTCFs or at home and the fear of dying alone; End-of-a-life cycle: a moment of personal reflection, farewell, affection, and faith; Preservation of the human dignity of older adults who are institutionalized in the terminal phase of life; Not being pressured and not being a burden to the family: desires related to the actions of professionals and family members toward the older adult; and Maintenance of senses and awareness of death: desire for a beneficial experience with pain control, purification, and surrendering of life through faith. Conclusion The desires and wishes expressed were related to broad aspects of life. Understanding these desires has emerged as an opportunity for healthcare professionals to introduce topics related to finitude, allowing these older adults to have their voices heard, felt, and respected.