Ability of management of families of children with chronic conditions for care at home

Author:

Felizardo Melissa Joice de Abreu1ORCID,Silva Juliana Barony da1ORCID,Neves Eliane Tatsch2ORCID,Duarte Elysângela Dittz1ORCID

Affiliation:

1. Universidade Federal de Minas Gerais, Brasil

2. Universidade Federal de Santa Maria, Brasil

Abstract

ABSTRACT: Objective to analyze the relationship between families' living context and their management skills in caring for children with chronic health conditions. Method a mixed, convergent parallel study, with the Family Management Style as the theoretical framework. Participants were family members of children with chronic conditions egressing from a Neonatal Intensive Care Unit in Southeastern Brazil. For the collection of quantitative data, the instrument Family Management Measure and a questionnaire of socio-demographic characterization were used. Quantitative data were analyzed using the Stata 15 statistical program. Qualitative data were produced by means of semi-structured interviews and submitted to the Directed Content Analysis. Results the families presented a positive average score in the Management Ability scale, having greater ease to meet the care needs of the child with chronic condition at home. Favorable social and economic conditions contributed to the family's ability to care for the child with chronic health condition. Conclusions and implications for practice it was concluded that there is a relationship between the context of life of the families and the ability to manage the child in chronic condition. Being able to count on a partner or other family members can improve the management skills of these families.

Publisher

FapUNIFESP (SciELO)

Subject

General Nursing

Reference39 articles.

1. Caregiver burden and its associated factors in caregivers of children and adolescents with chronic conditions;Adib-Hajbaghery M;Int J Community Based Nurs Midwifery,2019

2. Accessibility of children with special health needs to the health care network;Neves ET;Rev Bras Enferm,2019

3. Garantia dos direitos sociais das crianças com condições crônicas: reinventando o cuidado para a cidadania;Tavares TS;Rev Bras Enferm,2021

4. Paternal care to children and adolescent with chronic disease: maternal perception;Ramos RM;Rev Gaúcha Enferm,2018

5. Adaptation and resilience in families of individuals with down syndrome living in Ireland;Caples M;Br J Learn Disabil,2018

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