Quality of life in young onset dementia: an updated systematic review

Author:

Baptista Maria Alice Tourinho1,Santos Raquel Luiza1,Kimura Nathália1,Lacerda Isabel Barbeito1,Johannenssen Aud2,Barca Maria Lage2,Engedal Knut2,Dourado Marcia Cristina Nascimento1

Affiliation:

1. Universidade Federal do Rio de Janeiro, Brazil

2. Norwegian Centre for Aging and Health, Norway

Abstract

Introduction Young onset dementia (YOD) develops before 65 years of age and has specific age-related adverse consequences for quality of life (QoL). We systematically examined factors related to the QoL of people with YOD and their caregivers. Method This systematic review used the PRISMA methodology. The literature search was undertaken on July 5, 2015, using Cochrane, PubMed, SciELO, PsycINFO, Scopus and Thomson Reuters Web of Science electronic databases. The search keywords included early onset and young onset combined with, dementia, Alzheimer, vascular dementia, mixed dementia, frontotemporal dementia, quality of life, well-being and unmet needs. Nine studies were included. We revised objectives, study design, sample, instruments and results related to QoL. Results People with YOD rated their own QoL significantly higher than their caregivers. Greater awareness of disease among people with YOD is associated with better QoL in caregivers. A relationship was found between unmet needs and daytime activities, lack of companionship and difficulties with memory. Issues associated with unmet needs were prolonged time to diagnosis, available health services and lack of caregiver's own future perspective. Conclusion Consideration should be given to conducting investigations with more homogeneous samples and use of a clear concept of QoL. The present study highlights the need for future research in a wider range of countries, using instruments specifically for YOD. It would be interesting if studies could trace parallels with late onset dementia groups.

Publisher

FapUNIFESP (SciELO)

Subject

Psychiatry and Mental health,General Medicine

Reference27 articles.

1. The prevalence and causes of younger onset dementia in Eastern Sydney, Australia;Withall A;Int Psychogeriatr,2014

2. Epidemiology of early-onset dementia: a review of the literature;Vieira RT;Clin Pract Epidemiol Ment Health,2013

3. Clinical profile of young-onset dementia: a study from Eastern India;Shankar N;Neurol Asia,2008

4. Levantamento epidemiológico de demência pré-senil no instituto de psiquiatria e centro de doenças de Alzheimer da UFRJ;Cruz BS,2002

5. Young onset dementia: epidemiology, clinical symptoms, family burden, support and outcome;Harvey RJ,1998

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