Author:
Dong Dong,Xiong Shiyi,Nichini Elena,Chen Xiaoqiong,Liu Binjuan,Zhu Liling,Yip Faustina Fu,Sun Luming,Zhu Jianfeng
Abstract
ObjectiveDue to the changing medical demands in the healthcare system, there is a need for a standardized and professionalized curriculum for genetic counselors. This mixed-method study will observe and evaluate the first Peer Experiential and Reciprocal Supervision (PEERS) training program on genetic counseling among medical practitioners in China; to provide feedback and recommendation for future training and practices.MethodsA genetic counselor training program was held from December 10–11, 2016 in a fetal medicine unit and prenatal diagnosis center in Shanghai with 59 participants from clinical centers, hospitals, and organizations in China. An ethnographic reflexive assessment with a structured questionnaire were used to provide insights and feedback on the training experience.ResultsResults indicate an inadequate mastery of genetic and fetal knowledge; lack of empathetic understanding and cultural sensitivity; difficulties in adopting a non-directive counseling approach; distance between reality and fictionality in the training; overall training's helpfulness.ConclusionThe professionalization of genetic counseling in China is in the making with the soaring demands for genetic counseling services; this first experiment of PEERS training turned out to be needed, worth to be adapted toward medical centers across China, to better understand and face the challenges rising from genetic counseling practice.
Reference23 articles.
1. The global state of the genetic counseling profession;Abacan;Eur J Hum Genet.,2019
2. The rise of the genetic counseling profession in China;Sun;Am J Med Genet C Semin Med Genet.,2019
3. The practice of genetic counselling—a comparative approach to understanding genetic counselling in China;Sui;BioSocieties,2009
4. Important! An Epoch-Making Chapter in Genetic Counselling: The Yangtze River Delta Genetic Counselling Diagnosis Network Officially Established.2022
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