The Functioning of Hospice in the Perception of Family Members of Cancer Surgery and Hospice Patients

Author:

Aniśko-Trembecka Paulina1,Popławska Magda2,Krajewska-Kułak Elżbieta3ORCID,Mickiewicz Irena4,Kułak Wojciech5

Affiliation:

1. Doctoral Studies, Medical University of Białystok, 15-089 Bialystok, Poland

2. Student Research Group, Department of Integrated Medical Care, Medical University of Bialystok, 15-089 Białystok, Poland

3. Department of Integrated Medical Care, Medical University of Bialystok, 15-089 Bialystok, Poland

4. Independent Public Palliative Care Team for Them, John Paul II in Suwałki, 16-402 Suwałki, Poland

5. Department of Pediatric Rehabilitation, Center of Early Support for Handicapped Children “Give a Chance”, Medical University of Białystok, 15-274 Bialystok, Poland

Abstract

Background: Palliative care in Poland is for all dying people and their families to have timely access to quality care services. The study aimed to assess the perception of the role of hospice care by families of patients treated in oncological surgery departments and hospices. Methods: The study included 211 family members of cancer patients, comprising 108 family members of cancer surgery patients (Group I) and 103 hospice patients (Group II). The study used a diagnostic survey method with a proprietary questionnaire. Results: 74.9% of people in Group I and 84.6% in Group II experienced positive associations with hospice care. 86% of respondents from Group I believed that hospice is a place where patients can die with dignity, while 68.3% of those from Group II believed it is where patients receive professional care. 56.7% from Group I and 65.4% from Group II did not feel anxious about hospice care. According to 68.6% of people in Group I, informing the patient that he or she is in hospice as well as about his or her disease should depend on the patient’s condition. In the opinion of 75% of Group II, the patient should always be informed. In Group I (68.3%) and Group II (91.5%), the dominant opinion was that the family should take part in the care and treatment of the patient. 78.4% of respondents in Group I and 96.4% in Group II recommend hospice to other families. Conclusions: Most families of cancer patients from both the oncological surgery departments (Group I) and hospice (Group II) had positive first associations with hospice care. However, families from Group II had more critical remarks on hospice functioning.

Publisher

MDPI AG

Subject

Health, Toxicology and Mutagenesis,Public Health, Environmental and Occupational Health

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