A Holistic Approach to Expressing the Burden of Caregivers for Stroke Survivors: A Systematic Review

Author:

Tziaka Eftychia1,Tsiakiri Anna1ORCID,Vlotinou Pinelopi2ORCID,Christidi Foteini1,Tsiptsios Dimitrios3ORCID,Aggelousis Nikolaos4ORCID,Vadikolias Konstantinos1,Serdari Aspasia5

Affiliation:

1. Neurology Department, Democritus University of Thrace, 68100 Alexandroupolis, Greece

2. Department of Occupational Therapy, University of West Attica, 12243 Athens, Greece

3. 3rd Department of Neurology, Aristotle University of Thessaloniki, 54124 Thessaloniki, Greece

4. Department of Physical Education and Sport Science, Democritus University of Thrace, 69100 Komotini, Greece

5. Department of Child & Adolescent Psychiatry, Medical School, Democritus University of Thrace, 68100 Alexandroupolis, Greece

Abstract

This systematic review explores the multifaceted challenges faced by caregivers of stroke survivors, addressing the global impact of strokes and the anticipated rise in survivors over the coming decades. Following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines, a thorough literature search identified 34 relevant studies published between 2018 and 2023. The review categorizes caregiver burden into four domains: physical health, social functioning, financial issues, and psychological health. Caregivers often experience a decline in physical health, marked by chronic fatigue, sleep disturbances, and pain. Emotional distress is prevalent, leading to anxiety and depression, especially in cases of high burden. Financial strains arise from medical expenses and employment changes, exacerbating the overall burden. Contextual factors, such as cultural norms and resource availability, influence the caregiver experience. The Newcastle–Ottawa scale assessed the methodological quality of studies. The conclusion emphasizes tailored interventions and support systems for caregivers, with practical recommendations for healthcare professionals, therapists, mental health professionals, financial counselors, and policymakers. This comprehensive review enhances the understanding of caregiver experiences and provides actionable insights to improve stroke care and rehabilitation The study’s novelty lies in its holistic examination of caregiver burden in stroke care, its focus on the recent literature, and its emphasis on forecasting caregiver outcomes, contributing valuable insights for proactive intervention strategies.

Publisher

MDPI AG

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