The Support Priorities of Older Carers of People Living with Dementia: A Nominal Group Technique Study

Author:

Herron Daniel1ORCID,Runacres Jessica2ORCID

Affiliation:

1. Department of Psychology, Staffordshire University, Stoke-on-Trent ST4 2DF, UK

2. Department of Midwifery and Allied Health, Staffordshire University, Stafford ST18 0YB, UK

Abstract

The aim of this study was to understand the support priorities of older (65+ years old) carers of people living with dementia. Two nominal group technique focus groups were carried out with older carers of people living with dementia. Twelve carers participated across two focus groups. Participants individually identified support priorities, and through several steps, reached a consensus to produce a ranked list of support priorities. The results consisted of two lists (one list per group), which when combined made up 15 support priorities. These priorities are presented alongside their overall and mean ranking. The authors did not refine these priorities after the focus groups, however, as there was overlap between priorities across the two liststhe results benefited from being themed. These overarching themes consisted of prioritising the carers’ holistic needs; having a sense of belonging; support needs to be accessible and timely; support to meet the wellbeing and personhood of the person living with dementia; and understanding and training for the wider community. These results have highlighted support priorities, developed by older carers, that services and organisations can use to better inform the support and services that older carers receive.

Funder

Research England via Staffordshire University’s Policy Impact Acceleration Small Funding Award

Publisher

MDPI AG

Subject

Health Information Management,Health Informatics,Health Policy,Leadership and Management

Reference42 articles.

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2. Establishing priorities for psychosocial supports and services among family carers of people with dementia in Ireland;Teahan;Dementia,2021

3. Alzheimer’s Society (2023, May 13). Fix Dementia Care: The Case for the Dementia Fund. Available online: https://www.alzheimers.org.uk/sites/default/files/2019-05/Dementia%20Fund%20Report.pdf.

4. NHS Digital (2023, May 13). Personal Social Services Survey of Adult Carers in England (SACE), Available online: https://files.digital.nhs.uk/publication/a/o/sace_report_2016-17.pdf.

5. Lindeza, P., Rodrigues, M., Costa, J., Guerreiro, M., and Rosa, M.M. (2020). Impact of dementia on informal care: A systematic review of family caregivers’ perceptions. BMJ Support. Palliat. Care.

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