Preparing for Cancer: A Qualitative Study of Hispanic Patient and Caregiver Needs

Author:

Rosario-Ramos Lianel1,Torres-Marrero Stephanie1ORCID,Rivera Tiffany1,Navedo Maria Elena2,Burgos Rosael1,Garriga Mayra1,del Carmen Pacheco Maria1,Lopez Betsy1,Torres Yamilet1,Torres-Blasco Normarie13ORCID

Affiliation:

1. School of Behavioral and Brain Sciences, Ponce Health Sciences University, Ponce 00716, Puerto Rico

2. Department of Medicine, University of Connecticut, Storrs, CT 06269, USA

3. Ponce Research Institute, Ponce 00716, Puerto Rico

Abstract

Background: Cancer disproportionately affects Hispanic populations, yet the preparedness of Hispanic caregiver–patient dyads facing cancer remains understudied. This study aims to identify essential components of preparedness needs and inform future psychosocial interventions for this demographic. Methods: Secondary analyses were conducted utilizing focus groups to develop a communication intervention for Hispanic patients and caregivers. Transcripts were qualitatively analyzed using NVivo v12 (2020). Results: Analysis revealed symptom management and treatment comprehension as pivotal aspects of preparation. Additionally, preparedness among our sample emerged by addressing the multifaceted dimensions of preparedness, including psychological, emotional, educational, familial, practical, financial, and spiritual aspects. Conclusions: Tailoring interventions encompassing diverse dimensions of preparedness can foster inclusivity and maximize their impact on supportive measures. This underscores the necessity for culturally sensitive approaches when delivering interventions supporting Hispanic individuals navigating the challenges of cancer.

Funder

National Cancer Institute

National Institutes on Minority Health and Health Disparities

Publisher

MDPI AG

Reference56 articles.

1. Cancer statistics for hispanics/latinos, 2015;Siegel;CA A Cancer J. Clin.,2015

2. Cancer statistics for hispanics/latinos, 2018;Miller;CA A Cancer J. Clin.,2018

3. “Maintaining hope”: Challenges in counseling latino patients with advanced cancer;Gany;J. Psychosoc. Oncol. Res. Pract.,2020

4. Comprehensive assessment of cancer patients’ concerns and the association with quality of life;Yokoo;Jpn. J. Clin. Oncol.,2014

5. Importance of quality-of-life priorities and preferences surrounding treatment decision making in patients with cancer and oncology clinicians;Williams;Cancer,2020

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号  京ICP备18003416号-3