Spiritual Needs of Older Adults Living with Dementia: An Integrative Review

Author:

Britt Katherine Carroll1,Boateng Augustine C. O.2ORCID,Zhao Hui3,Ezeokonkwo Francesca C.3,Federwitz Chad4ORCID,Epps Fayron5ORCID

Affiliation:

1. NewCourtland Center for Transitions and Health, Department of Biobehavioral Health Sciences, School of Nursing, University of Pennsylvania, Philadelphia, PA 19104, USA

2. Department of Biobehavioral Health Sciences, School of Nursing, University of Pennsylvania, Philadelphia, PA 19104, USA

3. School of Nursing, James Madison University, Harrisonburg, VA 22807, USA

4. Gerontology, Western Colorado Community College, Grand Junction, CO 81505, USA

5. Nell Hodgson Woodruff School of Nursing, Emory University, Atlanta, GA 30322, USA

Abstract

Older adults living with dementia experience progressive decline, prompting reliance on others for spiritual care and support. Despite a growing interest in studying persons living with dementia (PLwDs), empirical evidence on the spiritual needs of PLwDs has not been synthesized. Using the Whittemore and Knafl method, this integrative review examined the literature from 2000 to 2022 on the spiritual care needs of PLwDs. We sought to identify characteristics of the spiritual needs of PLwDs and ways to address them. The ATLA Religion, CINAHL, PsycINFO, PubMed, and Socindex databases were used to search the literature, and 12 peer-reviewed articles met the inclusion criteria. Spiritual care needs varied across studies. Overall, findings support the importance of identifying PLwDs’ religious and spiritual backgrounds to inform person-centered care. Spiritual needs were identified as verbal and non-verbal expressions related to past meaning and religious and spiritual background and were not consistently addressed in care. Providers reported observing spiritual distress in the mild stage prompting the need for spiritual care. There is a great need for dementia-specific spiritual assessment tools and spiritual care interventions to support spiritual well-being in dementia care. Spiritual care involves facilitating religious rituals and providing spiritual group therapy and religious and spiritual activities.

Publisher

MDPI AG

Subject

Health Information Management,Health Informatics,Health Policy,Leadership and Management

Reference78 articles.

1. (2022, September 13). World Health Organization, Available online: https://www.who.int/news-room/fact-sheets/detail/dementia.

2. (2022, September 13). World Health Organization, Available online: https://www.who.int/news/item/02-09-2021-world-failing-to-address-dementia-challenge.

3. Still living, loving, and laughing: Spiritual life in the dementia unit;Perkins;J. Relig. Spirit. Aging,2015

4. Spiritual care in advanced dementia from the perspective of health providers: A qualitative systematic review;Occup. Ther. Int.,2021

5. Spirituality within dementia care: Perceptions of health professionals;Bursell;Br. J. Occup. Ther.,2010

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