Perceptions, Attitudes, and Knowledge toward Advance Directives: A Scoping Review

Author:

Macedo João Carlos123ORCID,Rego Francisca4ORCID,Nunes Rui5ORCID

Affiliation:

1. Nursing School, University of Minho, Campus de Gualtar, 4710-057 Braga, Portugal

2. Health Sciences Research Unit: Nursing (UICISA: E), Nursing School of Coimbra (ESEnfC), Av. Bissaya Barreto, 3046-851 Coimbra, Portugal

3. Research Centre for Justice and Governance (JusGov), School of Law, University of Minho, Campus de Gualtar, 4710-057 Braga, Portugal

4. Faculty of Medicine, University of Porto, 4200-319 Porto, Portugal

5. Center of Bioethics, Faculty of Medicine, University of Porto, 4200-319 Porto, Portugal

Abstract

(1) Background: Advance directives are an expression of a person’s autonomy regarding end-of-life care. Several studies have shown that the level of completion in countries where advance directives are legalised is low. To better understand this phenomenon, it is important to know the perceptions, attitudes, and knowledge that the population has about this instrument. The aim of this article was to explore a population’s perceptions and/or attitudes and/or knowledge toward advance directives. (2) Methods: A search was conducted in March 2023 in the ISI Web of Knowledge, Scopus, and PubMed databases using the following keywords: “advance care directives”, “advance care planning”, “perceptions”, “attitudes”, and “knowledge”. Two hundred and twenty-four (224) articles were identified, and thirteen (13) were included for analysis. (3) Results: The selected articles point to a low level of knowledge toward advance directives: they recognise a strong positive attitude of the population toward the implementation of advance directives but a low level of achievement. (4) Conclusions: Studies on perceptions/attitudes/knowledge toward advance directives are important to understand the real needs of the population regarding this issue and to implement more adequate and effective promotion and dissemination measures.

Publisher

MDPI AG

Subject

Health Information Management,Health Informatics,Health Policy,Leadership and Management

Reference69 articles.

1. Advance Directives in Some Western European Countries: A Legal and Ethical Comparison;Veshi;Eur. J. Health Law,2015

2. Chan, H.Y. (2018). Advance Directives: Rethinking Regulation, Autonomy & Healthcare Decision-Making, Springer International Publishing.

3. Nunes, R. (2020). Directivas Anticipadas de Voluntad, Consejo Federal de Medicina. Available online: http://portal.cfm.org.br/.

4. Benzeenhöfer, O. (2009). Luis Kutner and the Development of the Advance Directive (Living Will), GWAB. Available online: http://publikationen.ub.uni-frankfurt.de/frontdoor/index/index/docId/34515.

5. Due Process of Euthanasia: The Living Will, A Proposal;Kutner;Indiana Law J.,1969

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