Guidelines for surveillance of patients with von Hippel‐Lindau disease: Consensus statement of the International VHL Surveillance Guidelines Consortium and VHL Alliance

Author:

Daniels Anthony B.12,Tirosh Amit3ORCID,Huntoon Kristin4,Mehta Gautam U.5,Spiess Philippe E.6,Friedman Debra L.27,Waguespack Steven G.8,Kilkelly Jill E.9,Rednam Surya10,Pruthi Sumit11,Jonasch Eric A.12,Baum Laura13ORCID,Chahoud Jad6ORCID,

Affiliation:

1. Division of Ocular Oncology and Pathology Department of Ophthalmology & Visual Sciences Vanderbilt University Medical Center Nashville Tennessee USA

2. Vanderbilt‐Ingram Cancer Center Vanderbilt University Medical Center Nashville Tennessee USA

3. Neuroendocrine Tumors Service Sheba Medical Center and Sackler Faculty of Medicine Tel Aviv University Tel Aviv Israel

4. Department of Neurosurgery The University of Texas MD Anderson Cancer Center Houston Tennessee USA

5. The House Clinic Los Angeles California USA

6. Department of Genitourinary Oncology Moffitt Cancer Center Tampa Florida USA

7. Division of Hematology/Oncology Department of Pediatrics Vanderbilt University Medical Center Nashville Texas USA

8. Department of Endocrine Neoplasia and Hormonal Disorders The University of Texas MD Anderson Cancer Center Houston Texas USA

9. Division of Pediatric Anesthesia Department of Anesthesiology Vanderbilt University Medical Center Nashville Tennessee USA

10. Division of Pediatric Hematology‐Oncology Department of Pediatrics Baylor College of Medicine Houston Texas USA

11. Division of Pediatric Neuroradiology Department of Radiology Vanderbilt University Medical Center Nashville Tennessee USA

12. Department of Genitourinary Medical Oncology Division of Cancer Medicine The University of Texas MD Anderson Cancer Center Houston Texas USA

13. Division of Hematology/Oncology Department of Internal Medicine Vanderbilt University Medical Center Nashville Tennessee USA

Abstract

Von Hippel‐Lindau disease is a rare inherited cancer‐predisposition syndrome. The authors report the updated recommendations for the multiorgan surveillance protocols.

Publisher

Wiley

Subject

Cancer Research,Oncology

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