Commentary: Patients as Partners: Building on the Experience of Outcome Measures in Rheumatology

Author:

Kirwan John R.1,de Wit Maarten P. T.2,Bingham Clifton O.3,Leong Amye4,Richards Pamela1,Tugwell Peter5,Voshaar Marieke6,Gossec Laure7,

Affiliation:

1. University of Bristol and Bristol Royal Infirmary; Bristol UK

2. VU University Medical Centre; Amsterdam The Netherlands

3. Johns Hopkins University; Baltimore Maryland

4. Global Alliance for Musculoskeletal Health/Bone and Joint Decade; Santa Barbara California

5. University of Ottawa; Ottawa Ontario Canada

6. University of Twente; Enschede The Netherlands

7. Sorbonne Universités, Université Paris 6, Institut Pierre Louis d'Epidémiologie et de Santé Publique, and Pitie-Salpétrière Hospital, AP-HP, Paris, France. Members of the OMERACT Executive Committee are shown in Appendix A

Publisher

Wiley

Subject

Immunology,Rheumatology,Immunology and Allergy

Reference20 articles.

1. http://www.omeract.org/

2. OMERACT 6 brings new perspectives to rheumatology measurement research;Saag;J Rheumatol,2003

3. Patients’ perceptions of fatigue in rheumatoid arthritis: overwhelming, uncontrollable, ignored;Hewlett;Arthritis Rheum,2005

4. Patient perspective: fatigue as a recommended patient centered outcome measure in rheumatoid arthritis;Kirwan;J Rheumatol,2007

5. Involving patient research partners has a significant impact on outcomes research: a responsive evaluation of the international OMERACT conferences;Wit;BMJ Open,2013

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