Face validity of the Kids’ ITP Tools (KIT) in the era of thrombopoietin receptor agonists-Reference-Cited by-同舟云学术

Face validity of the Kids’ ITP Tools (KIT) in the era of thrombopoietin receptor agonists

Published:2024-01-24 Issue: Volume: Page:
ISSN:1545-5009
Container-title:Pediatric Blood & Cancer
language:en
Short-container-title:Pediatric Blood & Cancer

Author:

McGuire Catherine¹^ORCID,Young Nancy L.¹,Livingston Joel²,Dhir Vinita¹,Blanchette Victor S.¹,Kirby‐Allen Melanie³,Klaassen Robert J.¹^ORCID

Affiliation:

1. The Children's Hospital of Eastern Ontario (CHEO) The University of Ottawa Ottawa Ontario Canada

2. Department of Pediatrics The Stollery Children's Hospital, The University of Alberta Edmonton Alberta Canada

3. The Hospital for Sick Children (SickKids) The University of Toronto Toronto Ontario Canada

Abstract

AbstractThe Kids’ ITP Tools (KIT) is a questionnaire to assess quality of life of children with immune thrombocytopenia (ITP). The aim of this study was to update this previously validated tool to align with changes in clinical practice, specifically, treatment with thrombopoietin receptor agonists (TPO‐RAs). Children aged 1–18 with ITP and/or their families were recruited to participate in interviews to review the KIT. Twenty‐six interviews were conducted. Based on interview data from children and families, current guidelines, and expert opinion, five changes were made to the KIT in order to improve its face validity.

Publisher

Wiley

Subject

Oncology,Hematology,Pediatrics, Perinatology and Child Health

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/pbc.30888

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