1. Department of Medical Genetics King Faisal Specialist Hospital and Research Center Riyadh Saudi Arabia
2. College of Medicine, Alfaisal University Riyadh Saudi Arabia
3. Metabolomics Expertise Center, Center for Cancer Biology VIB Leuven Belgium
4. Metabolomics Expertise Center, Department of Oncology KU Leuven Leuven Belgium
5. Laboratory of Hepatology, Department CHROMETA KU Leuven Leuven Belgium
6. Department of Clinical Genomics and Laboratory of Medical Pathology Mayo Clinic Rochester Minnesota USA
7. Department of Pediatrics, Division of Human Genetics Children's Hospital of Philadelphia Philadelphia Pennsylvania USA
8. Child Neurology and Psychiatry Unit, Department of Clinical and Experimental Medicine University of Catania Catania Italy
9. Portuguese Association for Congenital Disorders of Glycosylation (CDG) Lisbon Portugal
10. UCIBIO, Departamento Ciências da Vida, Faculdade de Ciências e Tecnologia Universidade NOVA de Lisboa Caparica, Lisbon Portugal
11. Professionals and Patient Associations International Network (CDG & Allies‐PPAIN) Lisbon Portugal
12. Department of Paediatrics and Adolescent Medicine, First Faculty of Medicine Charles University and General University Hospital Prague Czech Republic
13. Metabolic Medicine, Queensland Children's Hospital Brisbane Australia
14. Department of Metabolic Medicine The Royal Children's Hospital Melbourne Victoria Australia
15. Center for Child and Adolescent Medicine, Department University of Heidelberg Heidelberg Germany
16. National Human Genome Research Institute, National Institutes of Health Bethesda Maryland USA
17. Sanford Children's Health Research Center Sanford‐Burnham‐Prebys Medical Discovery Institute La Jolla California USA
18. Metabolic Department Great Ormond Street Hospital NHS Foundation Trust and Institute for Child Health, NIHR Biomedical Research Center (BRC), University College London London UK
19. Center for Metabolic Diseases KU Leuven Leuven Belgium
20. Division of Genetic Medicine, Department of Pediatrics University of Washington School of Medicine Seattle Washington USA
21. Center for Integrative Brain Research Seattle Children's Research Institute Seattle Washington USA
22. Department of Human Genetics Radboud University Medical Center Nijmegen Netherlands
23. Centro de Genética Médica Doutor Jacinto Magalhães Unidade de Bioquímica Genética Porto Portugal
24. Biochemical Genetics Laboratory, Department of Laboratory Medicine and Pathology Mayo Clinic College of Medicine Rochester Minnesota USA
25. Department of Paediatrics and Metabolic Center University Hospitals Leuven Leuven Belgium
26. Department of Inborn Errors of Metabolism and Paediatrics the Institute of Mother and Child Warsaw Poland
27. Neurology Department Hospital Sant Joan de Déu, U‐703 Centre for Biomedical Research on Rare Diseases (CIBER‐ER), Instituto de Salud Carlos III Barcelona Spain
28. Section of Inborn Errors of Metabolism, Department of Biochemistry and Molecular Genetics Hospital Clínic, IDIBAPS, CIBERER Barcelona Spain
29. Department of Clinical Genetics Institute of Clinical Medicine, University of Tartu Tartu Estonia
30. Department of Neurology Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center Nijmegen the Netherlands
31. Department of Development and Regeneration KU Leuven Leuven Belgium