Access to psychosocial support for people with brain tumor and family members: Healthcare professional perspectives

Author:

Lion Katarzyna M.1ORCID,Pike Kerryn E.123,Dhillon Haryana M.45ORCID,Koh Eng‐Siew678,Pinkham Mark B.910,Shaw Joanne4ORCID,Halkett Georgia K. B.11ORCID,Ownsworth Tamara1ORCID

Affiliation:

1. School of Applied Psychology & Menzies Health Institute Queensland Griffith University Nathan Queensland Australia

2. Griffith Centre for Mental Health Griffith University Nathan Queensland Australia

3. School of Psychology & Public Health & John Richards Centre for Rural Ageing Research La Trobe University Victoria Australia

4. Psycho‐Oncology Cooperative Research Group School of Psychology Faculty of Science University of Sydney Sydney New South Wales Australia

5. Centre for Medical Psychology & Evidence‐based Decision‐making School of Psychology Faculty of Science University of Sydney Sydney New South Wales Australia

6. South Western Sydney Clinical School University of New South Wales Faculty of Medicine Sydney New South Wales Australia

7. Liverpool and Macarthur Cancer Therapy Centres Liverpool New South Wales Australia

8. Ingham Institute for Applied Medical Research Liverpool New South Wales Australia

9. School of Medicine University of Queensland Saint Lucia Queensland Australia

10. Department of Radiation Oncology Princess Alexandra Hospital Saint Lucia Queensland Australia

11. Curtin School of Nursing/Curtin Health Innovation Research Institute Curtin University Perth Western Australia Australia

Abstract

AbstractObjectivesOngoing access to psychosocial support is important to maintain the well‐being of people with brain tumor (PwBT) and their families; yet, there is limited knowledge of psychosocial care access. This qualitative study aimed to develop an understanding of psychosocial support pathways specific to PwBT from the perspectives of Australian healthcare professionals.MethodsSemi‐structured interviews were conducted with 21 healthcare professionals working in hospital and community services supporting PwBT and their family members. Transcribed interviews were coded and analyzed thematically.ResultsThe three major themes identified were: (1) Challenges in fitting people into the care system within existing pathways; (2) Benefits of longer‐term care coordination and interdisciplinary connections; and (3) Brain tumor affects the whole family. Despite established psychosocial care pathways, service access varied and lacked continuity for individuals with lower‐grade glioma and benign tumors across the illness trajectory.ConclusionsHealthcare professionals recognize the need for improved access to care coordination and multidisciplinary psychosocial care tailored to the varying needs of PwBT and their families.

Publisher

Wiley

Subject

Psychiatry and Mental health,Oncology,Experimental and Cognitive Psychology

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