Affiliation:
1. Behavioral Medicine and Clinical Psychology Cincinnati Children's Hospital Medical Center Cincinnati Ohio USA
2. Harvard Medical School Boston Children's Hospital Boston Massachusetts USA
Abstract
AbstractDespite the effectiveness of hydroxyurea, adherence remains low for adolescents and young adults (AYA) living with sickle cell disease (SCD). This study evaluated the feasibility, acceptability, and initial efficacy of a clinic‐based, multicomponent (e.g., storytelling, problem solving) intervention with 20 AYA living with SCD. Results found that adherence significantly improved from intervention to follow‐up 1 [t(19) = −2.213, p = .039]. AYA also were generally satisfied with the intervention. These findings, although promising, should be replicated on a larger scale.