1. The John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute Newcastle University and Newcastle Hospitals NHS Foundation Trust Newcastle upon Tyne UK
2. Neurology Department Biodonostia Health Research Institute, Neuromuscular Area, Hospital Donostia, Basque Health Service Donostia‐San Sebastian Spain
3. Center for Translational Science, Division of Biostatistics and Study Methodology Children's National Health System Washington District of Columbia USA
4. Pediatrics, Epidemiology and Biostatistics George Washington University Washington District of Columbia USA
5. Centro de Investigación Biomédica en Red en Enfermedades Raras (CIBERER) Barcelona Spain
6. Neuromuscular Disorders Unit, Neurology Department Hospital de la Santa Creu i Sant Pau Barcelona Spain
7. The Jain Foundation Seattle Washington USA
8. Translational and Clinical Research Institute, Newcastle University Newcastle upon Tyne UK
9. University Paris‐Saclay, CEA, DRF, Service Hospitalier Frederic Joliot Orsay France
10. Charite Muscle Research Unit, Experimental and Clinical Research Center, a joint cooperation of the Charité Medical Faculty and the Max Delbrück Center for Molecular Medicine Berlin Germany
11. Department of Neurology and Neurological Sciences Stanford University School of Medicine Stanford California USA
12. The Children's Hospital at Westmead, and The University of Sydney Westmead New South Wales Australia
13. Department of Neurology Children's National Health System Washington District of Columbia USA
14. National Institutes of Health (NINDS) Bethesda Maryland USA
15. Service des maladies neuromusculaire et de la SLA, Hôpital de La Timone Marseille France
16. Department of Neurology Washington University School of Medicine St. Louis Missouri USA
17. Friedrich‐Baur‐Institute, Department of Neurology Ludwig‐Maximilians‐University of Munich Munich Germany
18. Neuromuscular Unit, Department of Neurology Hospital U. Virgen del Rocío/Instituto de Biomedicina de Sevilla Seville Spain
19. Centre de référence des maladies neuromusculaires, Institut de Myologie, AP‐HP, Sorbonne Université, Hôpital Pitié‐Salpêtrière Paris France
20. Department of Neurology National Center Hospital, National Center of Neurology and Psychiatry Tokyo Japan
21. Neuroscience Institute, Carolinas Neuromuscular/ALS‐MDA Center, Carolinas HealthCare System Charlotte North Carolina USA
22. Department of Neuroscience University of Padova Padua Italy
23. The Abigail Wexner Research Institute at Nationwide Children's Hospital Columbus Ohio USA
24. Department of Cardiology Freeman Hospital, NUTH NHS Hospitals Foundation Trust Newcastle upon Tyne UK