Caregiver skills training for caregivers of individuals with neurodevelopmental disorders: A systematic review and meta‐analysis

Author:

Reichow Brian12ORCID,Kogan Cary3,Barbui Corrado4,Maggin Daniel5,Salomone Erica6,Smith Isaac C.178,Yasamy M. Taghi9,Servili Chiara9

Affiliation:

1. AJ Pappanikou Center for Excellence in Developmental Disabilities Education, Research, and Service University of Connecticut Health Center Farmington CT USA

2. University of Florida Gainesville FL USA

3. University of Ottawa Ottawa ON Canada

4. World Health Organization Collaborating Centre for Research and Training in Mental Health and Service Evaluation, Section of Psychiatry, Department of Public Health and Community Medicine University of Verona Verona Italy

5. University of Illinois at Chicago Chicago IL USA

6. University of Milano‐Bicocca Milan Italy

7. Yale University New Haven CT USA

8. Virginia Tech Blacksburg VA USA

9. World Health Organization Geneva Switzerland

Abstract

AbstractAimTo systematically review the effectiveness of caregiver and parent skills training programs, including caregiver‐mediated interventions, for caregivers of individuals with neurodevelopmental disorders.MethodWe conducted a systematic review with a random‐effects meta‐analysis. We searched 11 electronic databases through July 2021 and used a snowball methodology to locate relevant articles of randomized controlled trials. Effect size estimates were pooled using Hedges' g from data extracted from study reports and through author requests using random‐effects meta‐analyses for three child outcome categories (child development, adaptive behavior, and problem behavior) and three caregiver outcome categories (parenting skills and knowledge, psychological well‐being, and interpersonal family relations).ResultsWe located 44 910 records, from which 75 randomized controlled trials involving 4746 individuals with neurodevelopmental disorders and their caregivers were included. Random‐effects meta‐analyses showed improvements in child development (g = 0.30; 99% confidence interval [CI] = 0.07–0.53) and reduction in reported problem behaviors (g = 0.41; 99% CI = 0.24–0.59), but not a statistically significant improvement in adaptive behavior (g = 0.28; 99% CI = −0.42 to 0.98). Caregivers showed improvements in parenting skills and knowledge (g = 0.72; 99% CI = 0.53–0.90), psychological well‐being (g = 0.52; 99% CI = 0.34–0.71), and interpersonal family relations (g = 0.76; 99% CI = 0.32–1.20).InterpretationCaregiver skills training programs benefit both caregivers and children with neurodevelopmental disorders. Skills training programs improve child development and behavior, improve parenting skills, reduce caregiver mental health issues, and improve family functioning. Programs using culturally appropriate training material to improve the development, functioning, and participation of children within families and communities should be considered when caring for children with neurodevelopmental disorders.

Funder

Autism Speaks

Publisher

Wiley

Subject

Neurology (clinical),Developmental Neuroscience,Pediatrics, Perinatology and Child Health

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