World bleeding disorders registry: The pilot study-Reference-Cited by-同舟云学术

World bleeding disorders registry: The pilot study

Published:2018-02-01 Issue:3 Volume:24 Page:e113-e116
ISSN:1351-8216
Container-title:Haemophilia
language:en
Short-container-title:Haemophilia

Author:

Coffin D.¹^ORCID,Herr C.¹,O'Hara J.²,Diop S.³^ORCID,Hollingsworth R.⁴,Srivastava A.⁵^ORCID,Lillicrap D.⁶,van den Berg H. M.⁷^ORCID,Iorio A.⁸^ORCID,Pierce G. F.¹^ORCID

Affiliation:

1. World Federation of Hemophilia; Montreal Canada

2. HCD Economics; Manchester UK

3. Cheikh Anta Diop University; Dakar Senegal

4. Medical Data Solutions and Services (MDSAS); Manchester UK

5. Christian Medical College; Vellore India

6. Queen's University; Kingston Canada

7. University Medical Center; Utrecht The Netherlands

8. McMaster University; Hamilton Canada

Publisher

Wiley

Subject

Genetics(clinical),Hematology,General Medicine

Link

http://onlinelibrary.wiley.com/wol1/doi/10.1111/hae.13431/fullpdf

Reference15 articles.

1. Clinical trials in rare disease: challenges and opportunities;Augustine;J Child Neurol,2013

2. The growing number of hemophilia registries: quantity vs. quality;Keipert;Clin Pharmacol Ther,2015

3. Designing and incorporating a real world data approach to international drug development and use: what the UK offers;Bate;Drug Discov Today,2016

4. Using real-world data for coverage and payment decisions: the ISPOR real-world data task force report;Garrison;Value in Health,2007

5. The pooling of manpower and resources through the establishment of European reference networks and rare disease patient registries is a necessary area of collaboration for rare renal disorders;Parker;Nephrol Dial Transplant,2014

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