The Chronic Angioedema Registry (CARE): Rationale, Methods and Implementation

Author:

Buttgereit T.12ORCID,Aulenbacher F.12,Gutsche A.12,Kolkhir P.12,Weller K.12,Vera Ayala C.12,Magerl M.12,Farkas H.3,Grumach A. S.4,Aygören‐Pürsün E.5,Bara N.6,Ben‐Shoshan M.7,Bernstein J.8,Betschel S.9,Bouillet L.1011ORCID,Caballero T.12,Cancian M.13,Castaldo A. J.14,Cimbollek S.15,Cohn D. M.16,Craig T.1718,Fomina D.192021,Gelincik A.22,Grivcheva‐Panovska V.23ORCID,Jindal A.24ORCID,Katelaris C.25,Kessel A.26,Kinaciyan T.27,Longhurst H. J.2829,Martinez‐Saguer I.30,Riedl M.31,Schöffl C.32,Staubach P.33,Zanichelli A.3435,Zhi Y.36,Balle Boysen H.14,Fok J. S.373839,Li P. H.40,Hakl R.41,Hide M.4243,Peter J.4445,Maurer M.12ORCID

Affiliation:

1. Angioedema Center of Reference and Excellence (ACARE), Institute of Allergology, Charité – Universitätsmedizin Berlin Corporate Member of Freie Universität Berlin and Humboldt‐Universität Zu Berlin Berlin Germany

2. Fraunhofer Institute for Translational Medicine and Pharmacology ITMP Immunology and Allergology Berlin Germany

3. Hungarian Angioedema Center of Reference and Excellence (ACARE), Department of Internal Medicine and Haematology Semmelweis University Budapest Hungary

4. Angioedema Center of Reference and Excellence (ACARE), Clinical Immunology University Center Faculdade de Medicina Do ABC Santo André Brazil

5. Department of Pediatrics University Hospital Frankfurt, Goethe University Frankfurt Frankfurt Germany

6. Romanian Hereditary Angioedema Expertise Centre, Centru Clinic Mediquest Sangeorgiu de Mures Romania

7. Division of Allergy, Immunology and Dermatology, Department of Pediatrics, Montreal Children's Hospital McGill University Montreal Quebec Canada

8. Department of Internal Medicine, Division of Rheumatology, Allergy and Immunology, Angioedema Center of Reference and Excellence (ACARE) University of Cincinnati College of Medicine Cincinnati Ohio USA

9. Department of Medicine, St. Michael's Hospital University of Toronto Toronto Ontario Canada

10. Angioedema Center of Reference and Excellence (ACARE) National Reference Center of Angioedema CREAK Grenoble France

11. Internal Medicine Department Grenoble University Hospital Grenoble France

12. Angioedema Center of Reference and Excellence (ACARE), Hereditary Angioedema National Reference Center (CSUR), Department of Allergy La Paz University Hospital, Hospital La Paz Institute for Health Research (IdiPAZ – Group 44), Biomedical Research Network on Rare Diseases (CIBERER U754) Madrid Spain

13. Angioedema Center of Reference and Excellence (ACARE), Departmental Unit of Allergology University Hospital of Padua Padua Italy

14. HAE International – HAEi Fairfax City Virginia USA

15. Hospital U. Virgen del Rocío Sevilla Spain

16. Angioedema Center of Reference and Excellence (ACARE), Amsterdam UMC, Department of Vascular Medicine, Amsterdam Cardiovascular Sciences University of Amsterdam Amsterdam Netherlands

17. Angioedema Center of Reference and Excellence (ACARE), Department of Medicine, Pediatrics and Biomedical Sciences Pennsylvania State University Hershey Pennsylvania USA

18. International Hospital, Times City Hanoi Vietnam

19. Angioedema Center of Reference and Excellence (ACARE), Moscow Clinical and Research Center of Allergology and Immunology, Clinical Hospital No 52 Moscow Healthcare Department Moscow Russia

20. Department of Clinical Immunology and Allergology I. M. Sechenov First Moscow State Medical University (Sechenov University) Moscow Russia

21. Department of Pulmonology Astana Medical University Astana Kazakhstan

22. Angioedema Center of Reference and Excellence (ACARE), Division of Immunology and Allergic Diseases, Department of Internal Medicine, Istanbul Faculty of Medicine Istanbul University Istanbul Turkey

23. Angioedema Center of Reference and Excellence (ACARE), University Clinic of Dermatology Ss Cyril and Methodius University Skopje Macedonia

24. Angioedema Center of Reference and Excellence (ACARE), Allergy Immunology Unit, Department of Pediatrics, Advanced Pediatrics Centre Post‐Graduate Institute of Medical Education and Research (PGIMER) Chandigarh India

25. Angioedema Center of Reference and Excellence (ACARE) Western Sydney University and Campbelltown Hospital Campbelltown New South Wales Australia

26. Angioedema Center of Reference and Excellence (ACARE), Division of Allergy and Clinical Immunology, Bnai Zion Medical Center and the Bruce and Ruth Rappaport Faculty of Medicine, Technion Haifa Israel

27. Angioedema Center of Reference and Excellence (ACARE), Department of Dermatology Medical University of Vienna Vienna Austria

28. Department of Medicine University of Auckland Auckland New Zealand

29. Department of Immunology Auckland City Hospital Auckland New Zealand

30. Pediatrics, Haemophilia Centre Rhine Main (HZRM) Moerfelden‐Walldorf Germany

31. Division of Rheumatology, Allergy, and Immunology University of California San Diego La Jolla California USA

32. Department of Dermatology Medical University of Graz Graz Austria

33. Angioedema Center of Reference and Excellence (ACARE), Department of Dermatology University Medical Center Mainz Mainz Germany

34. Departamento di Scienze Biomediche per la Salute Università Degli Studi di Milano Milan Italy

35. Operative Unit of Medicine, IRCCS Policlinico San Donato, San Donato Milanese Milan Italy

36. Department of Allergy, Peking Union Medical College Hospital Chinese Academy of Medical Sciences and Peking Union Medical College Beijing China

37. Angioedema Center of Reference and Excellence (ACARE), Department of Respiratory Medicine and General Medicine, Box Hill Hospital, Eastern Health Melbourne Victoria Australia

38. Monash Lung, Sleep and Allergy/Immunology Monash Medical Centre Melbourne Victoria Australia

39. Eastern Health Clinical School Monash University Melbourne Victoria Australia

40. Angioedema Center of Reference and Excellence (ACARE), Division of Rheumatology and Clinical Immunology, Department of Medicine, Queen Mary Hospital University of Hong Kong Hong Kong Hong Kong

41. Department of Clinical Immunology and Allergology, St. Anne's University Hospital in Brno and Faculty of Medicine Masaryk University Brno Czech Republic

42. Angioedema Center of Reference and Excellence (ACARE), Department of Dermatology, Graduate School of Biomedical & Health Sciences Hiroshima University Hiroshima Japan

43. Department of Dermatology Hiroshima City Hiroshima Citizens Hospital Hiroshima Japan

44. Angioedema Center of Reference and Excellence (ACARE), Division of Allergy and Clinical Immunology, Department of Medicine University of Cape Town Cape Town South Africa

45. Allergy and Immunology Unit University of Cape Town Lung Institute Cape Town South Africa

Funder

Takeda Pharmaceutical Company

CSL Behring

BioCryst

Publisher

Wiley

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