UCRAID (Ukrainian Citizen and refugee electronic support in Respiratory diseases, Allergy, Immunology and Dermatology) action plan

Author:

Bousquet Jean123ORCID,Samolinski Boleslaw4,Kaidashev Igor5,Maurer Marcus12ORCID,Roche Nicolas67,Sousa‐Pinto Bernardo89,Kurchenko Andrii10ORCID,Stepanenko Roman11ORCID,Tsaryk Vladyslav10ORCID,Klimek Ludger1213ORCID,Ventura Maria Teresa1415,Bedbrook Anna316,Czarlewski Wienczyslawa317,Lysanets Yuliia5,Kupczyk Maciej18,Skolimowski Łukasz19,Kulus Marek20,Del Giacco Stefano21ORCID,Ollert Markus222324ORCID,Garcia‐Aymerich Judith2526,Robalo Cordeiro Carlos27,Yorgancioglu Arzu28ORCID,Schlapbach Christoph29,Amaral Rita89ORCID,Bonaglia Cristina30,Bossé Isabelle31,Buquicchio Rosalba32,Christou Demetrios12,Fedoruk Galyna10,Fontanesi Pietro30,Gemicioglu Bilun33,Giuliano Antonio F. M.1434ORCID,Lepore Paolo35,Nakonechna Alla3637,Neisinger Sophia12,Pereira Ana M.89ORCID,Ramanauskaite Aiste12,Raciborski Filip4,Sitkauskiene Brigita38,Sokhatska Oksana39,Stepanenko Viktor11,Stevanovic Katarina12ORCID,Syzon Orysya40,Kvedariene Violeta4142,de Vries Govert43,van Eerd Michiel43,Valiulis Arunas4445,Fonseca Joao A.89,Anto Josep M.252646,Haahtela Tari47ORCID,Schünemann Holger48,Zuberbier Torsten12ORCID

Affiliation:

1. Institute of Allergology, Charité – Universitätsmedizin Berlin Corporate Member of Freie Universität Berlin and Humboldt‐Universität zu Berlin Berlin Germany

2. Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology Berlin Germany

3. MASK‐air Montpellier France

4. Department of Prevention of Environmental Hazards, Allergology and Immunology Medical University of Warsaw Warsaw Poland

5. Poltava State Medical University Poltava Ukraine

6. Pneumologie AP‐HP Centre Université de Paris Cité, Hôpital Cochin Paris France

7. UMR 1016 Institut Cochin Paris France

8. MEDCIDS ‐ Department of Community Medicine, Information and Health Decision Sciences, Faculty of Medicine University of Porto Porto Portugal

9. CINTESIS@RISE– Health Research Network, Faculty of Medicine University of Porto Porto Portugal

10. Department of Clinical Immunology and Allergology with section of Medical Genetic Bogomolets National Medical University Kiev Ukraine

11. Department of Dermatology and Venereology with Cosmetology Course Bogomolets National Medical University Kiev Ukraine

12. Department of Otolaryngology, Head and Neck Surgery Universitätsmedizin Mainz Mainz Germany

13. Center for Rhinology and Allergology Wiesbaden Germany

14. Allergy and Clinical Immunology University of Bari Medical School Bari Italy

15. Institute of Sciences of Food Production National Research Council (ISPA‐CNR) Bari Italy

16. ARIA Montpellier France

17. Medical Consulting Czarlewski Levallois France

18. Division of Internal Medicine, Asthma and Allergy Barlicki University Hospital, Medical University of Lodz Lodz Poland

19. Polish Society of Allergology Warsaw Poland

20. Department of Pediatric Respiratory Diseases and Allergology Medical University of Warsaw Warsaw Poland

21. Department of Medical Sciences and Public Health and Unit of Allergy and Clinical Immunology, University Hospital ‘Duilio Casula’ University of Cagliari Cagliari Italy

22. Department of Infection and Immunity Luxembourg Institute of Health Esch‐sur‐Alzette Luxembourg

23. Department of Dermatology and Allergy Centre Odense University Hospital Odense Denmark

24. Odense Research Center for Anaphylaxis (ORCA) Odense Denmark

25. ISGlobal, Barcelona Institute for Global Health Barcelona Spain

26. Universitat Pompeu Fabra (UPF) Barcelona Spain

27. Department of Pneumology Coimbra University Hospital, Faculty of Medicine Coimbra Portugal

28. Department of Pulmonary Diseases Celal Bayar University, Faculty of Medicine Manisa Turkey

29. Bern University Hospital Bern Switzerland

30. Institute ‘Bona Sforza’ University for Linguistic Mediators Bari Italy

31. Allergist La Rochelle France

32. Department of Dermatology Perrino Hospital Brindisi Italy

33. Department of Pulmonary Diseases Istanbul University‐Cerrahpaşa, Cerrahpaşa Faculty of Medicine Istanbul Turkey

34. Department of Internal Medicine ‘A. Murri’ University of Bari Medical School Bari Italy

35. Rotary Club Bari Mediterranean RY23/24 Bari Italy

36. Clinical Immunology and Allergy Unit, Sheffield Teaching Hospitals Sheffield UK

37. University of Liverpool Liverpool UK

38. Department of Immunology and Allergology, Medical Academy Lithuanian University of Health Sciences Kaunas Lithuania

39. Basic & Clinical Immunology Unit, Department of Pathology Faculty of Medicine of the University of Porto Porto Portugal

40. Department of Dermatology, Venereology Danylo Halytsky Lviv National Medical University Lviv Ukraine

41. Institute of Clinical Medicine, Clinic of Chest Diseases and Allergology, Faculty of Medicine Vilnius University Vilnius Lithuania

42. Department of Pathology, Faculty of Medicine, Institute of Biomedical Sciences Vilnius University Vilnius Lithuania

43. Peercode BV Geldermalsen The Netherlands

44. Interdisciplinary Research Group of Human Ecology, Institute of Clinical Medicine and Institute of Health Sciences Medical Faculty of Vilnius University Vilnius Lithuania

45. European Academy of Paediatrics (EAP/UEMS‐SP) Brussels Belgium

46. CIBER Epidemiología y Salud Pública (CIBERESP) Barcelona Spain

47. Skin and Allergy Hospital Helsinki University Hospital and University of Helsinki Helsinki Finland

48. Department of Health Research Methods, Evidence, and Impact & Department of Medicine McMaster University Hamilton Ontario Canada

Abstract

AbstractEight million Ukrainians have taken refuge in the European Union. Many have asthma and/or allergic rhinitis and/or urticaria, and around 100,000 may have a severe disease. Cultural and language barriers are a major obstacle to appropriate management. Two widely available mHealth apps, MASK‐air® (Mobile Airways Sentinel NetworK) for the management of rhinitis and asthma and CRUSE® (Chronic Urticaria Self Evaluation) for patients with chronic spontaneous urticaria, were updated to include Ukrainian versions that make the documented information available to treating physicians in their own language. The Ukrainian patients fill in the questionnaires and daily symptom‐medication scores for asthma, rhinitis (MASK‐air) or urticaria (CRUSE) in Ukrainian. Then, following the GDPR, patients grant their physician access to the app by scanning a QR code displayed on the physician's computer enabling the physician to read the app contents in his/her own language. This service is available freely. It takes less than a minute to show patient data to the physician in the physician's web browser. UCRAID—developed by ARIA (Allergic Rhinitis and its Impact on Asthma) and UCARE (Urticaria Centers of Reference and Excellence)—is under the auspices of the Ukraine Ministry of Health as well as European (European Academy of Allergy and Clinical immunology, EAACI, European Respiratory Society, ERS, European Society of Dermatologic Research, ESDR) and national societies.

Publisher

Wiley

Subject

Immunology,Immunology and Allergy

Cited by 3 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号  京ICP备18003416号-3