Association of stigma, diabetes distress and self‐efficacy with quality of life in adolescents with type 1 diabetes preparing to transition to adult care

Abstract

AbstractAimsIn type 1 diabetes (T1D), psychosocial factors may impact quality of life (QOL) and clinical outcomes, but remain understudied, particularly during late adolescence. Our aim was to determine whether stigma, diabetes distress and self‐efficacy are associated with QOL in adolescents with T1D as they are preparing to transition to adult care.MethodsWe conducted a cross‐sectional study of adolescents (ages 16–17 years) with T1D participating in the Group Education Trial to Improve Transition (GET‐IT) in Montreal, Canada. Participants completed validated questionnaires on stigma using the Barriers to Diabetes Adherence (BDA) stigma subscale, self‐efficacy (Self‐Efficacy for Diabetes Self‐Management Measure [SEDM], score 1–10), diabetes distress (Diabetes Distress Scale for Adults with type 1 diabetes) and QOL (Pediatric Quality of Life Inventory [PedsQL] 4.0 Generic Core Scale and PedsQL 3.2 Diabetes Module). We examined associations of stigma, diabetes distress and self‐efficacy with QOL using multivariate linear regression models adjusted for sex, diabetes duration, socioeconomic status and HbA1c.ResultsOf 128 adolescents with T1D, 76 (59%) self‐reported having the diabetes‐related stigma and 29 (22.7%) reported experiencing diabetes distress. Those with stigma had lower diabetes‐specific and general QOL scores compared with those without stigma, and stigma and diabetes distress were both associated with lower diabetes‐specific QOL and lower general QOL. Self‐efficacy was associated with higher diabetes‐specific and general QOL.ConclusionsStigma and diabetes distress are associated with lower QOL, whereas self‐efficacy is associated with higher QOL in adolescents with T1D preparing to transfer to adult care.