1. Children's Neurosciences Evelina London Children's Hospital, Guy's and St Thomas' NHS Foundation Trust London UK
2. Population Health Sciences Institute Newcastle University Newcastle upon Tyne UK
3. Transverse Myelitis Society Brentford UK
4. British Paediatric Neurology Association London UK
5. Centre for Clinical Brain Sciences University of Edinburgh Edinburgh UK
6. Royal Hospital for Children and Young People Edinburgh UK
7. Department of Clinical Infection, Microbiology & Immunology University of Liverpool Liverpool UK
8. Department of Biology University of Oxford Oxford UK
9. The James Lind Alliance, National Institute for Health and Care Research, School of Healthcare Enterprise and Innovation University of Southampton Southampton UK
10. Developmental Neurosciences Zayed Centre for Research into Rare Disease in Children, GOS‐Institute of Child Health, University College London London UK
11. Department of Neurology Great Ormond Street Hospital London UK
12. Department of Paediatric Neurology Bristol Royal Hospital for Children Bristol UK
13. CDKL5 UK UK
14. University Hospitals Bristol and Weston NHS Foundation Trust Bristol UK
15. Early Life Imaging, School of Biomedical Engineering and Imaging Sciences, Faculty of Life Sciences and Medicine King's College London London UK
16. Developmental Neurosciences Research and Teaching Department University College London NIHR BRC Great Ormond Street Institute of Child Health London UK
17. Paediatric Neurosciences Great Ormond Street Hospital for Children London UK
18. Women and Children's Health, School of Life Course & Population Sciences, Faculty of Life Sciences and Medicine King's College London London UK