1. EUROCAT Central Registry Centre for Maternal Fetal and Infant Research Institute for Nursing and Health Research University of Ulster Newtownabbey UK
2. Barts and the London School of Medicine and Dentistry Queen Mary University of London London UK
3. Centre for Intellectual and Developmental Disabilities Institute for Nursing and Health Research University of Ulster Newtownabbey UK
4. Hospital Lillebaelt Kolding Denmark
5. Division of Medical Genetics CHUV Lausanne Switzerland
6. Department of Health Information and Research Guardamangia Malta
7. Medical University of Graz Graz Austria
8. Department of Medical Genetics University of Medical Sciences Poznan Poland
9. INSERM, UMRS953 Hospital St. Vincent de Paul Paris France
10. Health Service Executive Dublin Ireland
11. Health Service Executive Kilkenny Ireland
12. Health Service Executive Cork Ireland