Negative and Positive Experiences During the COVID‐19 Pandemic in Canadians With Developmental Disabilities: A One‐Year Ontario‐Based Survey

Abstract

ABSTRACTPurposeUnderstanding the experiences of people with developmental disabilities during the initial period of COVID‐19 pandemic.MethodsIndividuals with developmental disabilities and their caregivers completed baseline and up to five follow‐up online surveys using the CRISIS‐AFAR measures, between July 2020 and September 2021. We used qualitative (thematic analysis) and quantitative (MANOVA) analytic methods.ResultsOne hundred and eighteen participants (64 caregivers on individuals 6–62 years, 54 self‐reporting individuals aged 17–55 years) completed baseline survey; 46 participants (23 caregivers, 23 self‐reporting adults) completed ≥1 follow‐up. Qualitative themes included uncertainty, and negative and positive influences on behaviours and routines, daily life and mental wellness. Those experiencing positive impacts did not stably perceive so longitudinally.ConclusionsDespite both negative and positive influences on individuals with developmental disabilities and their families, the prolonged pandemic had wide‐ranging repercussions. Emergency preparedness planning should consider the disruptive effects of public health measures on routine and support for this vulnerable population.