1. Pediatric Dermatology Research Alliance Portland Oregon USA
2. University of Massachusetts Chan Medical School Worcester Massachusetts USA
3. ExPPect, LLC USA
4. Pediatric Dermatology Research Alliance Patient Advisory Committee (PeDRA‐PtAC) Portland Oregon USA
5. National Foundation for Ectodermal Dysplasias Fairview Heights Illinois USA
6. International Alliance of Dermatology Patient Organizations Ottawa Ontario Canada
7. HS Foundation Santa Monica California USA
8. EB Research Partnership New York New York USA
9. Nevus Outreach Jonesboro Arkansas USA
10. National Eczema Association San Rafael California USA
11. Global Parents for Eczema Research Santa Barbara California USA
12. National Alopecia Areata Foundation San Rafael California USA
13. Pachyonychia Congenita Project Holladay Utah USA
14. Children's Skin Disease Foundation Walnut Creek California USA
15. The Sturge‐Weber Foundation Randolph New Jersey USA
16. Gorlin Syndrome Alliance Reading Pennsylvania USA
17. Foundation for Ichthyosis and Related Skin Types Colmar Pennsylvania USA