Peer support by and for people with learning disabilities

Author:

Ali Shalim1,Allum Peter2,Vassell Santino3,Levitan Tony4ORCID

Affiliation:

1. Choice Support London UK

2. Foundation for People with Learning Disabilities, London South Bank University London UK

3. Central and North West London Recovery & Wellbeing College UK

4. Sussex Partnership NHS Foundation Trust Brighton UK

Abstract

AbstractBackgroundThe emphasis of mental health services has changed to become more recovery focussed and is increasingly looking towards new roles such as peer support as a part of service provision (NHSE, 2019). However, services for people with learning disabilities and mental health difficulties have lagged behind with people with lived experience mainly involved in research and consultation to services rather than delivering interventions.MethodsThis article is based on four workshops held as part of a patient and public involvement and engagement (PPIE) consultation on a research study being developed to promote access to recovery colleges for people with learning disabilities. The workshops included three peer supporters with learning disabilities. In the article we describe our groups experiences and views on mental health, recovery and peer support.FindingsOur group discussed our views on mental health, what recovery means and the impact of peer support on us. We also discussed the skills people need to do peer support and the support they need from others to do these roles well.ConclusionsWe thought that peer support for people with learning disabilities can challenge stigma and help people with difficult experiences such as low self esteem and loneliness. Staff supporting people with learning disabilities may benefit from more training to implement peer support. More research on the kinds of peer support that are on offer for people with learning disabilities is needed.

Publisher

Wiley

Subject

Pediatrics,Pshychiatric Mental Health

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