Financial burden of epidermolysis bullosa on patients in the United States
Author:
Affiliation:
1. Department of Dermatology Stanford University School of Medicine Redwood City CA USA
2. deSouzaTech, LLC Berkeley CA USA
3. Department of Dermatology University of New South Wales Sydney NSW Australia
Funder
National Institutes of Health
Publisher
Wiley
Subject
Dermatology,Pediatrics, Perinatology and Child Health
Link
https://onlinelibrary.wiley.com/doi/pdf/10.1111/pde.14340
Reference5 articles.
1. Living in dressings and bandages: findings from workshops with people with Epidermolysis bullosa
2. Impact of Painful Wound Care in Epidermolysis Bullosa During Childhood: An Interview Study with Adult Patients and Parents
3. Evaluation of Wound Care Options in Patients with Recessive Dystrophic Epidermolysis Bullosa: A Costly Necessity
4. Access to wound dressings for patients living with epidermolysis bullosa - an Australian perspective
5. The challenges of living with and managing epidermolysis bullosa: insights from patients and caregivers
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1. Exploring the Impact of Epidermolysis Bullosa on Parents and Caregivers: A Cross-Cultural Validation of the Epidermolysis Bullosa Burden of Disease Questionnaire;Clinical, Cosmetic and Investigational Dermatology;2024-05
2. Natural History Study of Recessive Dystrophic Epidermolysis Bullosa Wounds and Patient Reported Outcomes Using Mobile Application Home Photography;2024-03-26
3. Practical Tips on Epidermolysis Bullosa for Caregivers: Part 2;Cureus;2024-03-04
4. Epidermolysis Bullosa: Practical Clinical Tips From the Field;Cureus;2024-02-07
5. Costs of UK community care for individuals with recessive dystrophic epidermolysis bullosa: Findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study;Skin Health and Disease;2024-01-10
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