Affiliation:
1. Department of Disability and Human Development University of Illinois at Chicago Chicago Illinois USA
Abstract
AbstractBackgroundDespite the enactment of disability laws/policies in India, research shows that caregivers of adults with intellectual and/or developmental disabilities experience inadequate formal supports/services due to dissemination barriers and lack of awareness about them. To address discrepancy between caregivers' support needs and the professionals' understanding of their needs, the study proposed to conduct a caregiver needs assessment so that culturally‐tailored programs are developed.MethodA strengths‐based mixed methods needs assessment was conducted with a convenience sample of 100 caregivers in Hyderabad, India. One hundred caregivers completed the survey and 15 caregivers participated in semi‐structured interviews.ResultsCaregivers needed more and improved formal supports/services, particularly from the government. Caregivers faced systemic and attitudinal barriers, and personal impediments to accessing them. Needs differed by care recipients' intellectual disability level, gender, and intellectual disability related conditions.ConclusionsResearchers, service providers and policymakers need to adopt innovative strategies to improve formal supports/services access.
Reference66 articles.
1. Administration of Community Living. (2023).Person centered planning.https://acl.gov/programs/consumer-control/person-centered-planning
2. Civic and legal advances in the rights of caregivers for persons with severe mental illness related disability
3. Understanding the Role of Formal and Informal Support Resources for Parents of Children with Autism Spectrum Disorder
4. Assessing Needs of Families with Handicapped Infants
5. Confidence intervals for effect sizes: Applying bootstrap resampling;Banjanovic E. S.;Practical Assessment, Research, and Evaluation,2016