System building and improvement for the diagnosis and treatment of rare diseases in Shanghai, China

Author:

Kang Qi1,Hu Jiahao2,Song Peipei1,He Jiangjiang13

Affiliation:

1. Department of Health Policy Research, Shanghai Health Development Research Center, Shanghai Medical Information Center

2. Department of Learning, Informatics, Management and Ethics, Karolinska Institutet

3. School of Public Health, Fudan University

Publisher

International Research and Cooperation Association for Bio & Socio-Sciences Advancement (IRCA-BSSA)

Subject

General Medicine

Reference14 articles.

1. 1. European Project for Rare Diseases National Plans Development (EUROPLAN). Recommendations for the development of national plans for rare diseases guidance document. https://download2.eurordis.org/europlan/2_EUROPLAN_Guidance_Documents_for_the_National_Conference/2_EUROPLAN_Recommendations_for_Rare_Disease_National_Plans_Final.pdf (accessed November 15, 2018).

2. 2. Shanghai Branch of the Red Cross Society of China, Notice on specific drugs for rare diseases that will be covered by the Children's Hospitalization Fund. http://www.redcross-sha.org/2015/View.aspx (accessed November 15, 2018). (in Chinese)

3. 3. Shanghai Municipal Health and Family Planning Commission. Notice on establishing Shanghai Rare Diseases Diagnosis and Treatment Center. http://www.wsjsw.gov.cn/fybj2/20180815/58246.html (accessed November 16, 2018). (in Chinese)

4. 4. Shanghai Municipal Health and Family Planning Commission. Notice on establishing the First Batch of Shanghai Rare Diseases Specialized Clinics. http://www.wsjsw.gov.cn/fybj2/20180815/58249.html (accessed November 16, 2018). (in Chinese)

5. 5. Shanghai Municipal People's Government. Several opinions of the Shanghai Municipal People's Government on promoting the quality development of the city's health service industry and accelerating the construction of a first-class dedicated center city. http://www.shanghai.gov.cn/nw2/nw2314/nw2319/nw12344/u26aw56500.html (accessed November 16, 2018). (in Chinese)

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