The French national registry of primary immunodeficiency diseases

Author:

Publisher

Elsevier BV

Subject

Immunology,Immunology and Allergy

Reference22 articles.

1. Why rare diseases are an important medical and social issue;Schieppati;Lancet,2008

2. Developing a national collaborative study system for rare genetic diseases;Watson;Genet. Med.,2008

3. Registries for robust evidence;Dreyer;Jama,2009

4. NIH Announces Expansion of Rare Diseases Clinical Research Network (http://www.nih.gov/news/health/oct2009/od-05.htm, last access October 5th, 2009). (2009).

5. U.S. and European Rare Disease Organizations Sign Strategic Alliance. http://www.rarediseases.org/news/Eurodis_and_NORD, last access, October 25th, 2009. (2009).

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