The NYCKidSeq randomized controlled trial: Impact of GUÍA digitally enhanced genetic results disclosure in diverse families

Author:

Suckiel Sabrina A.ORCID,Kelly Nicole R.,Odgis Jacqueline A.,Gallagher Katie M.,Sebastin Monisha,Bonini Katherine E.,Marathe Priya N.,Brown Kaitlyn,Di Biase Miranda,Ramos Michelle A.,Rodriguez Jessica E.,Scarimbolo Laura,Insel Beverly J.,Ferar Kathleen D.M.,Zinberg Randi E.,Diaz George A.,Greally John M.,Abul-Husn Noura S.,Bauman Laurie J.,Gelb Bruce D.,Horowitz Carol R.,Wasserstein Melissa P.,Kenny Eimear E.

Funder

National Human Genome Research Institute

National Institute on Minority Health and Health Disparities

National Institutes of Health

Publisher

Elsevier BV

Subject

Genetics (clinical),Genetics

Reference36 articles.

1. May you never forget what is worth remembering: the relation between recall of medical information and medication adherence in patients with inflammatory bowel disease;Linn;J. Crohns Colitis,2013

2. The role of effective communication with children and their families in fostering adherence to pediatric regimens;Dimatteo;Patient Educ. Couns.,2004

3. Implementation matters: How patient experiences differ when genetic counseling accompanies the return of genetic variants of uncertain significance;Patel;AMIA Annu. Symp. Proc.,2021

4. Projecting the Supply and Demand for Certified Genetic Counselors: a Workforce Study;Hoskovec;J. Genet. Couns.,2018

5. The future is now: Technology’s impact on the practice of genetic counseling;Gordon;Am. J. Med. Genet. C Semin. Med. Genet.,2018

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